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The MPS I Registry - 15 years of service to the community
by
Giugliani, Roberto
,
Clatterbuck, Cinde L.
,
Guffon, Nathalie
,
Muenzer, Joseph
,
Munoz-Rojas, Maria Veronica
,
Viskochil, David H.
Published in
Molecular genetics and metabolism
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Evolving observational registries: an evidence based approach to understanding data availability in the "Sanofi Genzyme Rare Disease Registries"
by
Dong, Danielle
,
Batista, Julie
,
Belk, Katherine
,
Cizmarik, Marta
,
Clatterbuck, Cinde
,
Faherty, Kathleen
,
Findlay, Hugh
,
Foster, Jean
,
Glaetzer, Anja
,
Gruskin, Daniel
,
Hartman, Bill
,
Ioschpe, Rafael
,
Loisel, Betsy
,
Ludin, Zarla
,
Massey, Linda
,
McMillin, Virginia
,
Moy, Kristin
,
O’Neil, Virginia
,
Sparks, Susan
,
Denzel, Christiane
Published in
Molecular genetics and metabolism
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