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Search Results - Dhaenens, Britt A. E.
Search Results - Dhaenens, Britt A. E.
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The PlexiQoL, a patient-reported outcome measure on quality of life in neurofibromatosis type 1-associated plexiform neurofibroma: translation, cultural adaptation and validation i...
by
Dhaenens, Britt A. E.
,
van Dijk, Sarah A.
,
Taal, Walter
,
Noordhoek, D. Christine
,
Coffey, Anna
,
McKenna, Stephen P.
,
Oostenbrink, Rianne
Published in
Journal of patient-reported outcomes
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Quality of life in individuals with neurofibromatosis type 1 associated cutaneous neurofibromas: validation of the Dutch cNF-Skindex
by
Dhaenens, Britt A. E.
,
van Dijk, Sarah A.
,
Fertitta, Laura
,
Taal, Walter
,
Wolkenstein, Pierre
,
Oostenbrink, Rianne
Published in
Journal of patient-reported outcomes
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Identifying challenges in neurofibromatosis: a modified Delphi procedure
by
Dhaenens, Britt A E
,
Ferner, Rosalie E
,
Bakker, Annette
,
Nievo, Marco
,
Evans, D Gareth
,
Wolkenstein, Pierre
,
Potratz, Cornelia
,
Plotkin, Scott R
,
Heimann, Guenter
,
Legius, Eric
,
Oostenbrink, Rianne
Published in
European journal of human genetics : EJHG
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Optimizing expert and patient input in pediatric trial design: Lessons learned and recommendations from a collaboration between conect4children and European Patient‐CEntric ClinicA...
by
Dhaenens, Britt A. E.
,
Mahler, Fenna
,
Batchelor, Hannah
,
Dicks, Pamela
,
Gaillard, Segolene
,
Nafria, Begonya
,
Kopp‐Schneider, Annette
,
Ribeiro, Maria Alexandra
,
Schwab, Matthias
,
Sparber‐Sauer, Monika
,
Leubner, Jonas
,
Wildt, Saskia N.
,
Oostenbrink, Rianne
Published in
Clinical and translational science
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Health-related quality of life of children with neurofibromatosis type 1: Analysis of proxy-rated PedsQL and CHQ questionnaires
by
Dhaenens, Britt A.E.
,
Rietman, André
,
Husson, Olga
,
Oostenbrink, Rianne
Published in
European journal of paediatric neurology
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Lessons learned from drug trials in neurofibromatosis: A systematic review
by
Dhaenens, Britt A.E.
,
Ferner, Rosalie E.
,
Evans, D. Gareth
,
Heimann, Guenter
,
Potratz, Cornelia
,
van de Ketterij, Edwin
,
Kaindl, Angela M.
,
Hissink, Geesje
,
Carton, Charlotte
,
Bakker, Annette
,
Nievo, Marco
,
Legius, Eric
,
Oostenbrink, Rianne
Published in
European journal of medical genetics
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Platform trial design for neurofibromatosis type 1, NF2-related schwannomatosis and non-NF2-related schwannomatosis: A potential model for rare diseases
by
Dhaenens, Britt A E
,
Heimann, Günter
,
Bakker, Annette
,
Nievo, Marco
,
Ferner, Rosalie E
,
Evans, D Gareth
,
Wolkenstein, Pierre
,
Leubner, Jonas
,
Potratz, Cornelia
,
Carton, Charlotte
,
Iloeje, Uchenna
,
Kirk, George
,
Blakeley, Jaishri O
,
Plotkin, Scott
,
Fisher, Michael J
,
Kim, AeRang
,
Driever, Pablo Hernáiz
,
Azizi, Amedeo A
,
Widemann, Brigitte C
,
Gross, Andrea
,
Parke, Tom
,
Legius, Eric
,
Oostenbrink, Rianne
Published in
Neuro-oncology practice
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