Validation of the COVID-19 Fears Questionnaires for Chronic Medical Conditions: A Scleroderma Patient-centered Intervention Network COVID-19 Cohort study by Wu, Yin, Kwakkenbos, Linda, Henry, Richard S., Tao, Lydia, Harb, Sami, Bourgeault, Angelica, Carrier, Marie-Eve, Levis, Brooke, Sun, Ying, Bhandari, Parash Mani, Carboni-Jiménez, Andrea, Gagarine, Maria, He, Chen, Krishnan, Ankur, Negeri, Zelalem F., Neupane, Dipika, Mouthon, Luc, Bartlett, Susan J., Benedetti, Andrea, Thombs, Brett D., Culos-Reed, Nicole, El-Baalbaki, Ghassan, Hebblethwaite, Shannon, Patten, Scott, Varga, John, Bustamante, Laura, Duchek, Delaney, Ellis, Kelsey, Rice, Danielle, Dyas, Laura, Fortuné, Catherine, Gietzen, Amy, Guillot, Geneviève, Lewis, Nancy, Nielsen, Karen, Richard, Michelle, Sauvé, Maureen, Welling, Joep

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Exploring Sources of Emotional Distress among People Living with Scleroderma: A Focus Group Study by Gumuchian, Stephanie T, Peláez, Sandra, Delisle, Vanessa C, Carrier, Marie-Eve, Jewett, Lisa R, El-Baalbaki, Ghassan, Fortune, Catherine, Hudson, Marie, Impens, Ann, Körner, Annett, Persmann, Jennifer, Kwakkenbos, Linda, Bartlett, Susan J, Thombs, Brett D

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Researcher and patient experiences of co-presenting research to people living with systemic sclerosis at a patient conference: content analysis of interviews by Wurz, Amanda, Ellis, Kelsey, Nordlund, Julia, Carrier, Marie-Eve, Cook, Vanessa, Gietzen, Amy, Adams, Claire, Nassar, Elsa-Lynn, Rice, Danielle B, Fortune, Catherine, Guillot, Genevieve, Mieszczak, Tracy, Richard, Michelle, Sauve, Maureen, Thombs, Brett D

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Changes in work and adequacy of financial resources during COVID-19 among people with systemic sclerosis: A Scleroderma Patient-centered Intervention Network study by Adams, Claire, Nassar, Elsa-Lynn, Carrier, Marie-Eve, Kwakkenbos, Linda, Henry, Richard S, Virgili-Gervais, Gabrielle, Hu, Sophie, Bartlett, Susan J, Fortuné, Catherine, Gietzen, Amy, Gottesman, Karen, Guillot, Geneviève, Hudson, Marie, Lawrie-Jones, Amanda, Lewis, Nancy, Malcarne, Vanessa, Mayes, Maureen D, Patten, Scott B, Richard, Michelle, Sauvé, Maureen, Varga, John, Welling, Joep, Wojeck, Robyn, Mouthon, Luc, Benedetti, Andrea, Thombs, Brett D

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Scleroderma Patient-centered Intervention Network—Scleroderma Support group Leader EDucation (SPIN-SSLED) program: non-randomised feasibility trial by Thombs, Brett D, Dyas, Laura, Pépin, Mia, Aguila, Kylene, Carrier, Marie-Eve, Tao, Lydia, Harb, Sami, Malcarne, Vanessa L, El-Baalbaki, Ghassan, Peláez, Sandra, Sauve, Maureen, Hudson, Marie, Platt, Robert W

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Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey by Gumuchian, Stephanie T., Delisle, Vanessa C., Kwakkenbos, Linda, Pépin, Mia, Carrier, Marie-Eve, Malcarne, Vanessa L., Peláez, Sandra, El-Baalbaki, Ghassan, Thombs, Brett D.

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Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross‐Sectional Study by Gumuchian, Stephanie T., Delisle, Vanessa C., Peláez, Sandra, Malcarne, Vanessa L., El‐Baalbaki, Ghassan, Kwakkenbos, Linda, Jewett, Lisa R., Carrier, Marie‐Eve, Pépin, Mia, Thombs, Brett D., Connolly, Kerri, Riggs, Robert, Dyas, Laura, Elrod, Stephen, Gottesman, Karen, Fortune, Catherine, McCusker, Anna, Sauve, Maureen, Richard, Michelle, Stephens, Nancy

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Training and support needs of scleroderma support group facilitators: the North American Scleroderma Support Group Facilitators Survey by Delisle, Vanessa C., Gumuchian, Stephanie T., El-Baalbaki, Ghassan, Körner, Annett, Malcarne, Vanessa L., Peláez, Sandra, Carrier, Marie-Eve, Pépin, Mia, Thombs, Brett D.

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Protocol for a partially nested randomized controlled trial to evaluate the effectiveness of the Scleroderma Patient-centered Intervention Network Support Group Leader EDucation (S... by Thombs, Brett D, Aguila, Kylene, Dyas, Laura, Carrier, Marie-Eve, Fedoruk, Claire, Horwood, Linda, Cañedo-Ayala, Mara, Sauvé, Maureen, Kwakkenbos, Linda, Malcarne, Vanessa L, El-Baalbaki, Ghassan, Peláez, Sandra, Connolly, Kerri, Hudson, Marie, Platt, Robert W

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Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study by Kwakkenbos, Linda, Thombs, Brett D, Khanna, Dinesh, Carrier, Marie-Eve, Baron, Murray, Furst, Daniel E, Gottesman, Karen, van den Hoogen, Frank, Malcarne, Vanessa L, Mayes, Maureen D, Mouthon, Luc, Nielson, Warren R, Poiraudeau, Serge, Riggs, Robert, Sauvé, Maureen, Wigley, Fredrick, Hudson, Marie, Bartlett, Susan J

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Effect of support group peer facilitator training programmes on peer facilitator and support group member outcomes: a systematic review by Delisle, Vanessa C, Gumuchian, Stephanie T, Kloda, Lorie A, Boruff, Jill, El-Baalbaki, Ghassan, Körner, Annett, Malcarne, Vanessa L, Thombs, Brett D

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Reasons for not participating in scleroderma patient support groups: a comparison of results from the North American and European scleroderma support group surveys by Kwakkenbos, Linda, Carboni-Jiménez, Andrea, Carrier, Marie-Eve, Pépin, Mia, Peláez, Sandra, Malcarne, Vanessa L., El-Baalbaki, Ghassan, Thombs, Brett D.

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Understanding coping strategies among people living with scleroderma: a focus group study by Gumuchian, Stephanie T., Peláez, Sandra, Delisle, Vanessa C., Carrier, Marie-Eve, Jewett, Lisa R., El-Baalbaki, Ghassan, Fortune, Catherine, Hudson, Marie, Körner, Annett, Kwakkenbos, Linda, Bartlett, Susan J., Thombs, Brett D.

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The Scleroderma Patient-Centered Intervention Network Self-Management Program: Protocol for a Randomized Feasibility Trial by Carrier, Marie-Eve, Kwakkenbos, Linda, Nielson, Warren R, Fedoruk, Claire, Nielsen, Karen, Milette, Katherine, Pope, Janet, Frech, Tracy, Gholizadeh, Shadi, Hummers, Laura, Johnson, Sindhu R, Piotrowski, Pamela, Jewett, Lisa, Gordon, Jessica, Chung, Lorinda, Bilsker, Dan, Turner, Kimberly A, Cumin, Julie, Welling, Joep, Fortune, Catherine, Leite, Catarina, Gottesman, Karen, Sauve, Maureen, Rodríguez-Reyna, Tatiana S, Hudson, Marie, Larche, Maggie, van Breda, Ward, Suarez-Almazor, Maria E, Bartlett, Susan J, Malcarne, Vanessa L, Mayes, Maureen D, Boutron, Isabelle, Mouthon, Luc, Wigley, Fredrick, Thombs, Brett D

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Validation of the Self‐Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient‐Centered Intervention Network Cohort Study by Riehm, Kira E., Kwakkenbos, Linda, Carrier, Marie‐Eve, Bartlett, Susan J., Malcarne, Vanessa L., Mouthon, Luc, Nielson, Warren R., Poiraudeau, Serge, Nielsen, Karen, Baron, Murray, Frech, Tracy, Hudson, Marie, Pope, Janet, Sauve, Maureen, Suarez‐Almazor, Maria E., Wigley, Fredrick M., Thombs, Brett D., Furst, Dan, Gottesman, Karen, Mayes, Maureen D., Riggs, Robert, van den Hoogen, Frank, Assassi, Shervin, Boutron, Isabelle, Costa Maia, Angela, El‐Baalbaki, Ghassan, Ells, Carolyn, van den Ende, Cornelia H. M., Fligelstone, Kim, Fortune, Catherine, Godard, Dominique, Harel, Daphna, Impens, Ann, Jang, Yeona, Johnson, Sindhu R., Tyrell Kennedy, Ann, Körner, Annett, Leite, Catarina, Marra, Carlo, Poole, Janet L., Portales, Alexandra, Sofia Rodriguez Reyna, Tatiana, Schouffoer, Anne A., Steele, Russell J., Welling, Joep, Wong‐Rieger, Durhane, Albert, Alexandra, Arsenault, Guylaine, Carreira, Patricia, Chung, Lorinda, Dagenais, Pierre, Denton, Christopher, Domsic, Robyn, Dunne, James V., Fortin, Paul, Gordon, Jessica, Gyger, Genevieve, Herrick, Ariane, Hinchcliff, Monique, Jones, Niall, Fernandes, Artur Jose de B., Kafaja, Suzanne, Khalidi, Nader, Korman, Benjamin, Larche, Maggie, Liang, Patrick, Masetto, Ariel, Robinson, David, Roux, Sophie, Schiopu, Elena, Smith, Doug, Spiera, Robert, Steen, Virginia, Thorne, Carter, Varga, John, Wilcox, Pearce, Delisle, Vanessa C., Fox, Rina S., Gholizadeh, Shadi, Fedoruk, Claire, Jewett, Lisa R., Levis, Brooke, Milette, Katherine, Pepin, Mia R., Mills, Sarah D.

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International variations in new housing supply by Catherine Fortune, Charlotte, Moohan, James Anthony John

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Exercise habits and factors associated with exercise in systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study by Azar, Marleine, Rice, Danielle B, Kwakkenbos, Linda, Carrier, Marie-Eve, Shrier, Ian, Bartlett, Susan J, Hudson, Marie, Mouthon, Luc, Poiraudeau, Serge, van den Ende, Cornelia H M, Johnson, Sindhu R, Rodriguez Reyna, Tatiana Sofia, Schouffoer, Anne A, Welling, Joep, Thombs, Brett D

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Reasons for non-participation in scleroderma support groups by Delisle, Vanessa C, Gumuchian, Stephanie T, Pelaez, Sandra, Malcarne, Vanessa L, El-Baalbaki, Ghassan, Körner, Annett, Hudson, Marie, Baron, Murray, Thombs, Brett D

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Using Optimal Test Assembly Methods for Shortening Patient‐Reported Outcome Measures: Development and Validation of the Cochin Hand Function Scale‐6: A Scleroderma Patient‐Centered... by Levis, Alexander W., Harel, Daphna, Kwakkenbos, Linda, Carrier, Marie‐Eve, Mouthon, Luc, Poiraudeau, Serge, Bartlett, Susan J., Khanna, Dinesh, Malcarne, Vanessa L., Sauve, Maureen, van den Ende, Cornelia H. M., Poole, Janet L., Schouffoer, Anne A., Welling, Joep, Thombs, Brett D., Baron, Murray, Ells, Carolyn, Jang, Yeona, Steele, Russell J., Furst, Dan, Kafaja, Suzanne, Gottesman, Karen, van den Hoogen, Frank, Mayes, Maureen D., Assassi, Shervin, Nielson, Warren R., Riggs, Robert, Wigley, Fredrick, Boutron, Isabelle, Maia, Angela Costa, Leite, Catarina, El‐Baalbaki, Ghassan, Persmann, Jennifer, Fligelstone, Kim, Fortune, Catherine, Nielsen, Karen, Frech, Tracy, Godard, Dominique, Hudson, Marie, Gyger, Genevieve, Delisle, Vanessa C., Jewitt, Lisa R., Levis, Brooke, Milette, Katherine, Impens, Ann, Johnson, Sindhu R., Kennedy, Ann Tyrell, Larche, Maggie, Khalidi, Nader, Marra, Carlo, Pope, Janet, Portales, Alexandra, Reyna, Tatiana Sofia Rodriguez, Suarez‐Almazor, Maria E., Wong‐Rieger, Durhane, Albert, Alexandra, Fortin, Paul, Ikic, Alena, Arsenault, Guylaine, Bissonnette, Lyne, Boire, Gilles, Bruns, Alessandra, Dagenais, Pierre, Fernandes, Artur Jose de B., Liang, Patrick, Masetto, Ariel, Roux, Sophie, Carreira, Patricia, Chung, Lorinda, Denton, Christopher, Gill, Anna, Domsic, Robyn, Dunne, James V., Wilcox, Pearce, Gordon, Jessica, Spiera, Robert, Herrick, Ariane L., Hinchcliff, Monique, Korman, Benjamin, Varga, John, Jones, Niall, Manning, Joanne, Robinson, David, Schiopu, Elena, Smith, Doug, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Fedoruk, Claire, Pepin, Mia R., Fox, Rina S., Gholizadeh, Shadi, Mills, Sarah D.

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Assessing differential item functioning for the Social Appearance Anxiety Scale: a Scleroderma Patient-centred Intervention Network (SPIN) Cohort Study by Sommer, Sophia J, Harel, Daphna, Kwakkenbos, Linda, Carrier, Marie-Eve, Gholizadeh, Shadi, Gottesman, Karen, Leite, Catarina, Malcarne, Vanessa L, Thombs, Brett D

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