Recommendations for assessing appearance concerns related to plexiform and cutaneous neurofibromas in neurofibromatosis 1 clinical trials by Merker, Vanessa L, Thompson, Heather L, Wolters, Pamela L, Buono, Frank D, Hingtgen, Cynthia M, Rosser, Tena, Barton, Belinda, Barnett, Carolina, Smith, Taylor, Haberkamp, Diana, McManus, Miranda L, Baldwin, Andrea, Moss, Irene P, Röhl, Claas, Martin, Staci

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