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Priority Outcomes in Sickle Cell Disease Treatment: Co-Creation and Implementation of a Preference Exercise With Patients and Caregivers to Inform Drug Development
by
Jalowsky, Maggie
,
Hauber, Brett
,
Scott, Mariah Jacqueline
,
Arkin, Steven
,
Coulter, Joshua R.
,
Watt, Stephen J
,
Kelly, L Mariah G
,
Valentine, Ashley
Published in
Journal of patient experience
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Patient Engagement In Research: Early Findings From The Patient-Centered Outcomes Research Institute
by
Forsythe, Laura P.
,
Carman, Kristin L.
,
Szydlowski, Victoria
,
Fayish, Lauren
,
Davidson, Laurie
,
Hickam, David H.
,
Hall, Courtney
,
Bhat, Geeta
,
Neu, Denese
,
Stewart, Lisa
,
Jalowsky, Maggie
,
Aronson, Naomi
,
Anyanwu, Chinenye Ursla
Published in
Health Affairs
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Barriers to the Use of Disease-Modifying Treatments in Sickle Cell Disease: A Survey of Patients and Caregivers
by
Kazarov, Christina
,
Novelli, Enrico M.
,
Kane-Gill, Sandra
,
Jonassaint, Charles L
,
Jalowsky, Maggie
,
Lewis, Cory A.
,
Newman, Terri
Published in
Blood
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