Ten simple rules for responsible big data research by Zook, Matthew, Barocas, Solon, Boyd, Danah, Crawford, Kate, Keller, Emily, Gangadharan, Seeta Peña, Goodman, Alyssa, Hollander, Rachelle, Koenig, Barbara A, Metcalf, Jacob, Narayanan, Arvind, Nelson, Alondra, Pasquale, Frank

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Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies by Johnston, Josephine, Lantos, John D., Goldenberg, Aaron, Chen, Flavia, Parens, Erik, Koenig, Barbara A.

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Ethics and Genomic Incidental Findings by McGuire, Amy L., Joffe, Steven, Koenig, Barbara A., Biesecker, Barbara B., McCullough, Laurence B., Blumenthal-Barby, Jennifer S., Caulfield, Timothy, Terry, Sharon F., Green, Robert C.

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"If relatives inherited the gene, they should inherit the data." Bringing the family into the room where bioethics happens by Gordon, Deborah R., Koenig, Barbara A.

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Community recommendations on biobank governance: Results from a deliberative community engagement in California by Dry, Sarah M, Garrett, Sarah B, Koenig, Barbara A, Brown, Arleen F, Burgess, Michael M, Hult, Jen R, Longstaff, Holly, Wilcox, Elizabeth S, Madrigal Contreras, Sigrid Karina, Martinez, Arturo, Boyd, Elizabeth A, Dohan, Daniel

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Post-trial access in implanted neural device research: Device maintenance, abandonment, and cost by Lázaro-Muñoz, Gabriel, Pham, Michelle T., Muñoz, Katrina A., Kostick-Quenet, Kristin, Sanchez, Clarissa E., Torgerson, Laura, Robinson, Jill, Pereira, Stacey, Outram, Simon, Koenig, Barbara A., Starr, Philip A., Gunduz, Aysegul, Foote, Kelly D., Okun, Michael S., Goodman, Wayne, McGuire, Amy L., Zuk, Peter

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Researcher Perspectives on Ethical Considerations in Adaptive Deep Brain Stimulation Trials by Muñoz, Katrina A, Kostick, Kristin, Sanchez, Clarissa, Kalwani, Lavina, Torgerson, Laura, Hsu, Rebecca, Sierra-Mercado, Demetrio, Robinson, Jill O, Outram, Simon, Koenig, Barbara A, Pereira, Stacey, McGuire, Amy, Zuk, Peter, Lázaro-Muñoz, Gabriel

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Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial by Merner, Amanda R., Kostick-Quenet, Kristin, Campbell, Tiffany A., Pham, Michelle T., Sanchez, Clarissa E., Torgerson, Laura, Robinson, Jill, Pereira, Stacey, Outram, Simon, Koenig, Barbara A., Starr, Philip A., Gunduz, Aysegul, Foote, Kelly D., Okun, Michael S., Goodman, Wayne, McGuire, Amy L., Zuk, Peter, Lázaro-Muñoz, Gabriel

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Ironic technology: Old age and the implantable cardioverter defibrillator in US health care by Kaufman, Sharon R., Mueller, Paul S., Ottenberg, Abigale L., Koenig, Barbara A.

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Researcher Perspectives on Data Sharing in Deep Brain Stimulation by Zuk, Peter, Sanchez, Clarissa E, Kostick, Kristin, Torgerson, Laura, Muñoz, Katrina A, Hsu, Rebecca, Kalwani, Lavina, Sierra-Mercado, Demetrio, Robinson, Jill O, Outram, Simon, Koenig, Barbara A, Pereira, Stacey, McGuire, Amy L, Lázaro-Muñoz, Gabriel

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Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons by Deverka, Patricia A., Gilmore, Dierdre, Richmond, Jennifer, Smith, Zachary, Mangrum, Rikki, Koenig, Barbara A., Cook-Deegan, Robert, Villanueva, Angela G., Majumder, Mary A., McGuire, Amy L.

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Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience by McGuire, Amy L, Basford, Melissa, Dressler, Lynn G, Fullerton, Stephanie M, Koenig, Barbara A, Li, Rongling, McCarty, Cathy A, Ramos, Erin, Smith, Maureen E, Somkin, Carol P, Waudby, Carol, Wolf, Wendy A, Clayton, Ellen Wright

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Impact of Direct-to-Consumer Predictive Genomic Testing on Risk Perception and Worry Among Patients Receiving Routine Care in a Preventive Health Clinic by James, Katherine M., MPH, Cowl, Clayton T., MD, MS, Tilburt, Jon C., MD, MPH, Sinicrope, Pamela S., DrPH, Robinson, Marguerite E., MAR, MA, Frimannsdottir, Katrin R., PhD, Tiedje, Kristina, PhD, Koenig, Barbara A., PhD

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Have We Asked Too Much of Consent? by Koenig, Barbara A.

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Patient, Caregiver, and Decliner Perspectives on Whether to Enroll in Adaptive Deep Brain Stimulation Research by Outram, Simon, Muñoz, Katrina A, Kostick-Quenet, Kristin, Sanchez, Clarissa E, Kalwani, Lavina, Lavingia, Richa, Torgerson, Laura, Sierra-Mercado, Demetrio, Robinson, Jill O, Pereira, Stacey, Koenig, Barbara A, Starr, Philip A, Gunduz, Aysegul, Foote, Kelly D, Okun, Michael S, Goodman, Wayne K, McGuire, Amy L, Zuk, Peter, Lázaro-Muñoz, Gabriel

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Genetic ancestry and diagnostic yield of exome sequencing in a diverse population by Mavura, Yusuph, Sahin-Hodoglugil, Nuriye, Hodoglugil, Ugur, Kvale, Mark, Martin, Pierre-Marie, Van Ziffle, Jessica, Devine, W. Patrick, Ackerman, Sara L., Koenig, Barbara A., Kwok, Pui-Yan, Norton, Mary E., Slavotinek, Anne, Risch, Neil

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Challenges in translational research: the views of addiction scientists by Ostergren, Jenny E, Hammer, Rachel R, Dingel, Molly J, Koenig, Barbara A, McCormick, Jennifer B

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A draft human pangenome reference by Liao, Wen-Wei, Ebler, Jana, Doerr, Daniel, Haukness, Marina, Hickey, Glenn, Lu, Shuangjia, Lucas, Julian K., Monlong, Jean, Abel, Haley J., Buonaiuto, Silvia, Cheng, Haoyu, Chu, Justin, Colonna, Vincenza, Eizenga, Jordan M., Feng, Xiaowen, Fulton, Robert S., Garg, Shilpa, Groza, Cristian, Guarracino, Andrea, Harvey, William T., Heumos, Simon, Howe, Kerstin, Jain, Miten, Lu, Tsung-Yu, Martin, Fergal J., Mitchell, Matthew W., Munson, Katherine M., Mwaniki, Moses Njagi, Novak, Adam M., Olsen, Hugh E., Sirén, Jouni, Tomlinson, Chad, Villani, Flavia, Vollger, Mitchell R., Antonacci-Fulton, Lucinda L., Baid, Gunjan, Baker, Carl A., Belyaeva, Anastasiya, Billis, Konstantinos, Carroll, Andrew, Chang, Pi-Chuan, Cook, Daniel E., Cook-Deegan, Robert M., Diekhans, Mark, Ebert, Peter, Fedrigo, Olivier, Frankish, Adam, Gao, Yan, Garrison, Nanibaa’ A., Giron, Carlos Garcia, Green, Richard E., Haggerty, Leanne, Hoekzema, Kendra, Hourlier, Thibaut, Ji, Hanlee P., Koenig, Barbara A., Korbel, Jan O., Kordosky, Jennifer, Koren, Sergey, Lee, HoJoon, Magalhães, Hugo, Marco-Sola, Santiago, Marijon, Pierre, McCartney, Ann, McDaniel, Jennifer, Mountcastle, Jacquelyn, Nattestad, Maria, Nurk, Sergey, Olson, Nathan D., Popejoy, Alice B., Puiu, Daniela, Rautiainen, Mikko, Regier, Allison A., Rhie, Arang, Sacco, Samuel, Sanders, Ashley D., Schneider, Valerie A., Schultz, Baergen I., Shafin, Kishwar, Sofia, Heidi J., Abou Tayoun, Ahmad N., Thibaud-Nissen, Françoise, Tricomi, Francesca Floriana, Wagner, Justin, Wood, Jonathan M. D., Zimin, Aleksey V., Bourque, Guillaume, Chaisson, Mark J. P., Flicek, Paul, Phillippy, Adam M., Zook, Justin M., Eichler, Evan E., Haussler, David, Wang, Ting, Miga, Karen H., Garrison, Erik, Marschall, Tobias, Hall, Ira M., Li, Heng, Paten, Benedict

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The Human Pangenome Project: a global resource to map genomic diversity by Wang, Ting, Antonacci-Fulton, Lucinda, Howe, Kerstin, Lawson, Heather A., Lucas, Julian K., Phillippy, Adam M., Popejoy, Alice B., Asri, Mobin, Carson, Caryn, Chaisson, Mark J. P., Chang, Xian, Cook-Deegan, Robert, Felsenfeld, Adam L., Fulton, Robert S., Garrison, Erik P., Garrison, Nanibaa’ A., Graves-Lindsay, Tina A., Ji, Hanlee, Kenny, Eimear E., Koenig, Barbara A., Li, Daofeng, Marschall, Tobias, McMichael, Joshua F., Novak, Adam M., Purushotham, Deepak, Schneider, Valerie A., Schultz, Baergen I., Smith, Michael W., Sofia, Heidi J., Weissman, Tsachy, Flicek, Paul, Li, Heng, Miga, Karen H., Paten, Benedict, Jarvis, Erich D., Hall, Ira M., Eichler, Evan E., Haussler, David

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Race and ancestry in biomedical research: exploring the challenges by Caulfield, Timothy, Fullerton, Stephanie M, Ali-Khan, Sarah E, Arbour, Laura, Burchard, Esteban G, Cooper, Richard S, Hardy, Billie-Jo, Harry, Simrat, Hyde-Lay, Robyn, Kahn, Jonathan, Kittles, Rick, Koenig, Barbara A, Lee, Sandra Sj, Malinowski, Michael, Ravitsky, Vardit, Sankar, Pamela, Scherer, Stephen W, Séguin, Béatrice, Shickle, Darren, Suarez-Kurtz, Guilherme, Daar, Abdallah S

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