Patient involvement in health research: A contribution to a systematic review on the effectiveness of treatments for degenerative ataxias by Serrano-Aguilar, P, Trujillo-Martin, M M, Ramos-Goni, J M, Mahtani-Chugani, V, Perestelo-Perez, L, La Paz, M Posada-De

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Analysis of disease costs and burden by Posada de la Paz, M

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EUROPLAN: A Project to Support the Development of National Plans on Rare Diseases in Europe by Taruscio, D., Gentile, A.E., De Santis, M., Ferrelli, R.M., de la Paz, M. Posada, Hens, M., Huizer, J., Fregonese, L., Stefanov, R., Bottarelli, V., Weinman, A., Le Cam, Y., Gavhed, D., Mincarone, P., Bushby, K., Frazzica, R.G., Donati, C., Vittozzi, L., Jessop, E.

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Programa de detección precoz de trastornos generalizados del desarrollo en las áreas de salud de Salamanca y Zamora by García Primo, P, Santos Borbujo, J, Martín Cilleros, M.V, Martínez Velarte, M, Lleras Muñoz, S, Posada de la Paz, M, Canal Bedia, R

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Social/economic costs and health-related quality of life in patients with juvenile idiopathic arthritis in Europe by Kuhlmann, A., Schmidt, T., Treskova, M., López-Bastida, J., Linertová, R., Oliva-Moreno, J., Serrano-Aguilar, P., Posada-de-la-Paz, M., Kanavos, P., Taruscio, D., Schieppati, A., Iskrov, G., Péntek, M., Delgado, C., von der Schulenburg, J. M., Persson, U., Chevreul, K., Fattore, G.

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Fibrodysplasia ossificans progressiva in Spain: epidemiological, clinical, and genetic aspects by Morales-Piga, A, Bachiller-Corral, J, Trujillo-Tiebas, M.J, Villaverde-Hueso, A, Gamir-Gamir, M.L, Alonso-Ferreira, V, Vázquez-Díaz, M, Posada de la Paz, M, Ayuso-García, C

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Further evidence supporting a genetic background for Paget's disease of bone in Spain by Morales-Piga, A., Bachiller-Corral, J., Bachiller-Corral, F., Villaverde-Hueso, A., Alonso-Ferreira, V., de la Paz, M. Posada, López-Abente, G.

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Prevalence of scleroderma in Spain: an approach for estimating rare disease prevalence using a disease model by Villaverde-Hueso, A., de la Paz, M. Posada, Martín-Arribas, M. C., Sánchez-Valle, E., Ramírez-González, A., Biairdi, P.

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PSY45 Social Economic Burden and Health-Related Quality of Life in Patients With Rare Diseases in Europe (BURQOL-RD Project). Spanish Results by Linertová, R, López-Bastida, J, Serrano-Aguilar, P, Posada-de-la-Paz, M

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Pervasive developmental disorders screening program in the health areas of Salamanca and Zamora in Spain by García Primo, P, Santos Borbujo, J, Martín Cilleros, M V, Martínez Velarte, M, Lleras Muñoz, S, Posada de la Paz, M, Canal Bedia, R

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Storage time and deodorization temperature influence the formation of aniline-derived compounds in denatured rapeseed oils by Ruiz-Méndez, M.V, Posada de la Paz, M, Abian, J, Calaf, R.E, Blount, B, Castro-Molero, N, Philen, R, Gelpı́, E

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National Rare Disease Registries: overview from Spain by de la Paz, M Posada, Alonso, V, Zurriaga, O, Astray, J, Aldana-Espinal, JM, Margolles, MJ, Jimñnez, J, Palomar, JA, Santana, M, Ramalle-Gomarra, E, Ramos, JM, Arribas, FE, Ãlamo, R, Gutiñrrez-Ãvila, G, Galmñs, A, Ribes, M García, Navarro, C, Errezola, M, Ardanaz, ME, Almansa, A, Garcia-Primo, P, Carroquino, MJ, Abaitua, I

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Mortalidad atribuida a telangiectasia hemorrágica hereditaria y variabilidad geográfica en España (1981-2016) by Angelica Ortega-Torres, Germán Sánchez-Díaz, Ana Villaverde-Hueso, Manuel Posada de la Paz, Verónica Alonso-Ferreira

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Impact of rare diseases in oral health by Molina-García, A, Castellanos-Cosano, L, Machuca-Portillo, G, Posada-de la Paz, M

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Pharmacogenetic Profile of Xenobiotic Enzyme Metabolism in Survivors of the Spanish Toxic Oil Syndrome by Ladona, Margarita G., Izquierdo-Martinez, Maravillas, de la Paz, Manuel Posada, de la Torre, Rafael, Ampurdanés, Coral, Segura, Jordi, Sanz, Emilio J.

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Hay lugar en atención primaria para las enfermedades poco frecuentes? El caso de la fibrodisplasia osificante progresiva by Morales-Piga, Antonio, García Ribes, Miguel, Arribas Álvaro, Pilar, Casado Álvaro, Carlos, Posada de La Paz, Manuel, Bachiller-Corral, Javier

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Delphi approach to select rare diseases for a European representative survey. The BURQOL-RD study by Linertová, Renata, Serrano-Aguilar, Pedro, Posada-de-la-Paz, Manuel, Hens-Pérez, Manuel, Kanavos, Panos, Taruscio, Domenica, Schieppati, Arrigo, Stefanov, Rumen, Péntek, Márta, Delgado, Claudia, Graf von der Schulenburg, Johann-Matthias, Persson, Ulf, Chevreul, Karine, Fattore, Giovanni, Worbes-Cerezo, Melany, Sefton, Mark, López-Bastida, Julio

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Toxic oil syndrome: Survival in the whole cohort between 1981 and 1995 by Valadés, P.Sánchez-Porro, Paz, M.Posada de la, Copa, P.de Andrés, Ribota, O.Gimenez, Borda, I.Abaitua

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PND30 - ECONOMIC IMPACT OF AUTISM SCREENING IN EUROPE by Linertová, R, García-Pérez, L., Canal-Bedia, R., Serrano-Aguilar, P., Posada-De-La-Paz, M

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P.314 Effect of a focused social and communication intervention (SCI) on preterm children at risk for ASD: a pilot study by Bejarano-Martín, Á., Canal-Bedia, R., Magán-Maganto, M., Fabián, A. Hernández, Castañeda, A.L. Calvarro, de Dios, S. Manso, García, P. Malmierca, Villoria, E. Díez, Río, C. Jenaro, Posada de la Paz, M.

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