The Scleroderma Research Topics Survey for patients and health care professionals: A Scleroderma Patient-centered Intervention Network Project by Tao, Lydia, Fedoruk, Claire, Turner, Kimberly A, Cumin, Julie, Carrier, Marie-Eve, Carboni-Jiménez, Andrea, Pépin, Mia R, Kwakkenbos, Linda, Thombs, Brett D

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The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts by Dougherty, Dane H, Kwakkenbos, Linda, Carrier, Marie-Eve, Salazar, Gloria, Assassi, Shervin, Baron, Murray, Bartlett, Susan J, Furst, Daniel E, Gottesman, Karen, van den Hoogen, Frank, Malcarne, Vanessa L, Mouthon, Luc, Nielson, Warren R, Poiraudeau, Serge, Sauvé, Maureen, Boire, Gilles, Bruns, Alessandra, Chung, Lorinda, Denton, Christopher, Dunne, James V, Fortin, Paul, Frech, Tracy, Gill, Anna, Gordon, Jessica, Herrick, Ariane L, Hinchcliff, Monique, Hudson, Marie, Johnson, Sindhu R, Jones, Niall, Kafaja, Suzanne, Larché, Maggie, Manning, Joanne, Pope, Janet, Spiera, Robert, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Wilcox, Pearce, Thombs, Brett D, Mayes, Maureen D

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Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study by Kwakkenbos, Linda, Thombs, Brett D, Khanna, Dinesh, Carrier, Marie-Eve, Baron, Murray, Furst, Daniel E, Gottesman, Karen, van den Hoogen, Frank, Malcarne, Vanessa L, Mayes, Maureen D, Mouthon, Luc, Nielson, Warren R, Poiraudeau, Serge, Riggs, Robert, Sauvé, Maureen, Wigley, Fredrick, Hudson, Marie, Bartlett, Susan J

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Validation of the Self‐Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient‐Centered Intervention Network Cohort Study by Riehm, Kira E., Kwakkenbos, Linda, Carrier, Marie‐Eve, Bartlett, Susan J., Malcarne, Vanessa L., Mouthon, Luc, Nielson, Warren R., Poiraudeau, Serge, Nielsen, Karen, Baron, Murray, Frech, Tracy, Hudson, Marie, Pope, Janet, Sauve, Maureen, Suarez‐Almazor, Maria E., Wigley, Fredrick M., Thombs, Brett D., Furst, Dan, Gottesman, Karen, Mayes, Maureen D., Riggs, Robert, van den Hoogen, Frank, Assassi, Shervin, Boutron, Isabelle, Costa Maia, Angela, El‐Baalbaki, Ghassan, Ells, Carolyn, van den Ende, Cornelia H. M., Fligelstone, Kim, Fortune, Catherine, Godard, Dominique, Harel, Daphna, Impens, Ann, Jang, Yeona, Johnson, Sindhu R., Tyrell Kennedy, Ann, Körner, Annett, Leite, Catarina, Marra, Carlo, Poole, Janet L., Portales, Alexandra, Sofia Rodriguez Reyna, Tatiana, Schouffoer, Anne A., Steele, Russell J., Welling, Joep, Wong‐Rieger, Durhane, Albert, Alexandra, Arsenault, Guylaine, Carreira, Patricia, Chung, Lorinda, Dagenais, Pierre, Denton, Christopher, Domsic, Robyn, Dunne, James V., Fortin, Paul, Gordon, Jessica, Gyger, Genevieve, Herrick, Ariane, Hinchcliff, Monique, Jones, Niall, Fernandes, Artur Jose de B., Kafaja, Suzanne, Khalidi, Nader, Korman, Benjamin, Larche, Maggie, Liang, Patrick, Masetto, Ariel, Robinson, David, Roux, Sophie, Schiopu, Elena, Smith, Doug, Spiera, Robert, Steen, Virginia, Thorne, Carter, Varga, John, Wilcox, Pearce, Delisle, Vanessa C., Fox, Rina S., Gholizadeh, Shadi, Fedoruk, Claire, Jewett, Lisa R., Levis, Brooke, Milette, Katherine, Pepin, Mia R., Mills, Sarah D.

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Exercise habits and factors associated with exercise in systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study by Azar, Marleine, Rice, Danielle B, Kwakkenbos, Linda, Carrier, Marie-Eve, Shrier, Ian, Bartlett, Susan J, Hudson, Marie, Mouthon, Luc, Poiraudeau, Serge, van den Ende, Cornelia H M, Johnson, Sindhu R, Rodriguez Reyna, Tatiana Sofia, Schouffoer, Anne A, Welling, Joep, Thombs, Brett D

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Using Optimal Test Assembly Methods for Shortening Patient‐Reported Outcome Measures: Development and Validation of the Cochin Hand Function Scale‐6: A Scleroderma Patient‐Centered... by Levis, Alexander W., Harel, Daphna, Kwakkenbos, Linda, Carrier, Marie‐Eve, Mouthon, Luc, Poiraudeau, Serge, Bartlett, Susan J., Khanna, Dinesh, Malcarne, Vanessa L., Sauve, Maureen, van den Ende, Cornelia H. M., Poole, Janet L., Schouffoer, Anne A., Welling, Joep, Thombs, Brett D., Baron, Murray, Ells, Carolyn, Jang, Yeona, Steele, Russell J., Furst, Dan, Kafaja, Suzanne, Gottesman, Karen, van den Hoogen, Frank, Mayes, Maureen D., Assassi, Shervin, Nielson, Warren R., Riggs, Robert, Wigley, Fredrick, Boutron, Isabelle, Maia, Angela Costa, Leite, Catarina, El‐Baalbaki, Ghassan, Persmann, Jennifer, Fligelstone, Kim, Fortune, Catherine, Nielsen, Karen, Frech, Tracy, Godard, Dominique, Hudson, Marie, Gyger, Genevieve, Delisle, Vanessa C., Jewitt, Lisa R., Levis, Brooke, Milette, Katherine, Impens, Ann, Johnson, Sindhu R., Kennedy, Ann Tyrell, Larche, Maggie, Khalidi, Nader, Marra, Carlo, Pope, Janet, Portales, Alexandra, Reyna, Tatiana Sofia Rodriguez, Suarez‐Almazor, Maria E., Wong‐Rieger, Durhane, Albert, Alexandra, Fortin, Paul, Ikic, Alena, Arsenault, Guylaine, Bissonnette, Lyne, Boire, Gilles, Bruns, Alessandra, Dagenais, Pierre, Fernandes, Artur Jose de B., Liang, Patrick, Masetto, Ariel, Roux, Sophie, Carreira, Patricia, Chung, Lorinda, Denton, Christopher, Gill, Anna, Domsic, Robyn, Dunne, James V., Wilcox, Pearce, Gordon, Jessica, Spiera, Robert, Herrick, Ariane L., Hinchcliff, Monique, Korman, Benjamin, Varga, John, Jones, Niall, Manning, Joanne, Robinson, David, Schiopu, Elena, Smith, Doug, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Fedoruk, Claire, Pepin, Mia R., Fox, Rina S., Gholizadeh, Shadi, Mills, Sarah D.

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Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating ‘not applicable’ responses as missing data: a Scleroderma Patie... by Merz, Erin L, Kwakkenbos, Linda, Carrier, Marie-Eve, Gholizadeh, Shadi, Mills, Sarah D, Fox, Rina S, Jewett, Lisa R, Williamson, Heidi, Harcourt, Diana, Assassi, Shervin, Furst, Daniel E, Gottesman, Karen, Mayes, Maureen D, Moss, Tim P, Thombs, Brett D, Malcarne, Vanessa L

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Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort by Jewett, Lisa R., Kwakkenbos, Linda, Carrier, Marie-Eve, Malcarne, Vanessa L., Harcourt, Diana, Rumsey, Nichola, Mayes, Maureen D., Assassi, Shervin, Körner, Annett, Fox, Rina S., Gholizadeh, Shadi, Mills, Sarah D., Fortune, Catherine, Portales, Alexandra, Thombs, Brett D., Baron, Murray, Bartlett, Susan J., Furst, Dan, Gottesman, Karen, van den Hoogen, Frank, Mouthon, Luc, Nielson, Warren R., Poiraudeau, Serge, Riggs, Robert, Sauve, Maureen, Wigley, Fredrick, Boutron, Isabelle, Costa Maia, Angela, El-Baalbaki, Ghassan, Ells, Carolyn, van den Ende, Cornelia, Fligelstone, Kim, Fortune, Catherine, Frech, Tracy, Godard, Dominique, Harel, Daphna, Hudson, Marie, Impens, Ann, Jang, Yeona, Johnson, Sindhu R., Kennedy, Ann Tyrell, Khanna, Dinesh, Larche, Maggie, Leite, Catarina, Marra, Carlo, Nielsen, Karen, Poole, Janet L., Pope, Janet, Rodriguez Reyna, Tatiana Sofia, Schouffoer, Anne A., Steele, Russell J., Suarez-Almazor, Maria E., Welling, Joep, Wong-Rieger, Durhane, Albert, Alexandra, Arsenault, Guylaine, Bissonnette, Lyne, Boire, Gilles, Bruns, Alessandra, Carreira, Patricia, Chung, Lorinda, Dagenais, Pierre, Denton, Christopher, Domsic, Robyn, Dunne, James V., Fortin, Paul, Gill, Anna, Gordon, Jessica, Gyger, Genevieve, Herrick, Ariane L., Hinchcliff, Monique, Ikic, Alena, Jones, Niall, de B. Fernandes, Artur Jose, Kafaja, Suzanne, Khalidi, Nader, Korman, Benjamin, Liang, Patrick, Manning, Joanne, Masetto, Ariel, Robinson, David, Roux, Sophie, Schiopu, Elena, Smith, Doug, Spiera, Robert, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Varga, John, Wilcox, Pearce, Delisle, Vanessa C., Fedoruk, Claire, Levis, Brooke, Pepin, Mia R., Persmann, Jennifer

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Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND) by Kwakkenbos, Linda, Carrier, Marie-Eve, Welling, Joep, Turner, Kimberly A, Cumin, Julie, Pépin, Mia, van den Ende, Cornelia, Schouffoer, Anne A, Hudson, Marie, van Breda, Ward, Sauve, Maureen, Mayes, Maureen D, Malcarne, Vanessa L, Nielson, Warren R, Nguyen, Christelle, Boutron, Isabelle, Rannou, François, Thombs, Brett D, Mouthon, Luc

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Increased Glucose Availability Attenuates Myocardial Ketone Body Utilization by Brahma, Manoja K, Ha, Chae-Myeong, Pepin, Mark E, Mia, Sobuj, Sun, Zhihuan, Chatham, John C, Habegger, Kirk M, Abel, Evan Dale, Paterson, Andrew J, Young, Martin E, Wende, Adam R

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Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross‐Sectional Study by Gumuchian, Stephanie T., Delisle, Vanessa C., Peláez, Sandra, Malcarne, Vanessa L., El‐Baalbaki, Ghassan, Kwakkenbos, Linda, Jewett, Lisa R., Carrier, Marie‐Eve, Pépin, Mia, Thombs, Brett D., Connolly, Kerri, Riggs, Robert, Dyas, Laura, Elrod, Stephen, Gottesman, Karen, Fortune, Catherine, McCusker, Anna, Sauve, Maureen, Richard, Michelle, Stephens, Nancy

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Factors associated with negative observer responses towards individuals with visible differences: A scoping review by Jewett, Lisa R., Gumuchian, Stephanie T., Pepin, Mia, Rice, Danielle B., Kolorz, Franziska, Harrison, Pamela, Thombs, Brett D.

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