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Qualitative interviews with adults with Classic Galactosemia and their caregivers: disease burden and challenges with daily living
by
Randall, Jason A
,
Sutter, Carolyn
,
Wang, Stella
,
Bailey, Evan
,
Raither, Lydia
,
Perfetti, Riccardo
,
Shendelman, Shoshana
,
Burbridge, Claire
Published in
Orphanet journal of rare diseases
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P047: Exit interviews with caregivers of pediatric patients with classic galactosemia demonstrate the meaningfulness of changes in the ACTION-Galactosemia Kids Trial
by
Bailey, Evan
,
Randall, Jason
,
Sutter, Carolyn
,
Raither, Lydia
,
Wang, Stella
,
Perfetti, Riccardo
,
Shendelman, Shoshana
,
Burbridge, Claire
Published in
Genetics in Medicine Open
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Understanding the patient experience of Classic Galactosemia in pediatric and adult patients: increased disease burden, challenges with daily living, and how they evolve over time
by
Randall, Jason A.
,
Sutter, Carolyn
,
Raither, Lydia
,
Wang, Stella
,
Bailey, Evan
,
Perfetti, Riccardo
,
Shendelman, Shoshana
,
Burbridge, Claire
Published in
Journal of patient-reported outcomes
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Genetics In Medicine Open
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Journal Of Patient-Reported Outcomes
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Orphanet Journal Of Rare Diseases
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Adults
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Caregivers
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Classic Galactosemia
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Galactose
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Galactosemia
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Life Sciences & Biomedicine
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