Co-developing The Canadian MPS Registry: A longitudinal rare disease patient registry by Mitchell, John J., Inbar-Feigenberg, Michal, Angel, Kim, Chakraborty, Pranesh, Lamoureux, Monica, Adams, John, Potter, Beth K., Stockler-Ipsirolgu, Sylvia, Howie, Alison H., Pace, Alex, Butcher, Nancy J., Greenberg, Cheryl, Hayeems, Robin, Laberge, Anne-Marie, Round, Jeff, Offringa, Martin, Oskoui, Maryam, Ruth, Chelsea, Schulze, Andreas, Speechley, Kathy, Thavorn, Kednapa, Trakadis, Yannis, Wilson, Kumanan, Lacaze, Thierry

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