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Patient/family views on data sharing in rare diseases: study in the European LeukoTreat project
by
Darquy, Sylviane
,
Moutel, Grégoire
,
Lapointe, Anne-Sophie
,
D'Audiffret, Diane
,
Champagnat, Julie
,
Guerroui, Samia
,
Vendeville, Marie-Louise
,
Boespflug-Tanguy, Odile
,
Duchange, Nathalie
Published in
European journal of human genetics : EJHG
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Patient/family views on data sharing in rare diseases: study in the European LeukoTreat project: Survey assessing data sharing in leukodystrophies
by
Darquy, Sylviane
,
Moutel, Grégoire
,
Lapointe, Anne-Sophie
,
d'Audiffret, Diane
,
Champagnat, Julie
,
Guerroui, Samia
,
Vendeville, Marie-Louise
,
Boespflug-Tanguy, Odile
,
Duchange, Nathalie
Published in
European journal of human genetics : EJHG
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European Journal Of Human Genetics : Ejhg
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European Journal Of Human Genetics
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Leukoencephalopathies - Therapy
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