Loading…

Development of a clinical Scandinavian registry for hidradenitis suppurativa; HISREG

Hidradenitis suppurativa (HS; or acne inversa) is a scarring and frequently persistent inflammatory disorder of the terminal hair follicles of apocrine gland-bearing skin in adults. Treatments include local or systemic antibiotics, hormones, retinoids and systemic immunosuppressive agents (1), altho...

Full description

Saved in:
Bibliographic Details
Published in:Acta dermato-venereologica 2013-01, Vol.93 (3), p.350-351
Main Authors: Ingvarsson, Gisli, Dufour, Deidre Nathalie, Killasli, Hassan, Sartorius, Karin, Lapins, Jan, Skau, Philip A, Moseng, Dagfinn, Dinparvar, Darjosh, Furberg, Anne-Sofie, Jemec, Gregor B E, Emtestam, Lennart
Format: Article
Language:English
Subjects:
Citations: Items that cite this one
Online Access:Request full text
Tags: Add Tag
No Tags, Be the first to tag this record!
cited_by cdi_FETCH-LOGICAL-c443t-e785363e89bd93c34aae87eca777969a6b218aa688fd33cb39bd4679137e202e3
cites
container_end_page 351
container_issue 3
container_start_page 350
container_title Acta dermato-venereologica
container_volume 93
creator Ingvarsson, Gisli
Dufour, Deidre Nathalie
Killasli, Hassan
Sartorius, Karin
Lapins, Jan
Skau, Philip A
Moseng, Dagfinn
Dinparvar, Darjosh
Furberg, Anne-Sofie
Jemec, Gregor B E
Emtestam, Lennart
description Hidradenitis suppurativa (HS; or acne inversa) is a scarring and frequently persistent inflammatory disorder of the terminal hair follicles of apocrine gland-bearing skin in adults. Treatments include local or systemic antibiotics, hormones, retinoids and systemic immunosuppressive agents (1), although on evaluation these have been shown to have only limited or temporary effect. In refractory cases, surgery is necessary, and should be radical and performed as early as possible (2, 3). It is essential to establish a registry of HS in order to address the following important issues: to assess the safety and effectiveness of different treatments; to identify which specific patient subgroups have the best risk/benefit ratio for a given treatment; and to create benchmark data for quality assurance of the medical service. This manuscript presents the Scandinavian Registry for HS, HISREG.
doi_str_mv 10.2340/00015555-1468
format article
fullrecord <record><control><sourceid>proquest_3HK</sourceid><recordid>TN_cdi_cristin_nora_10037_6026</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>1369231993</sourcerecordid><originalsourceid>FETCH-LOGICAL-c443t-e785363e89bd93c34aae87eca777969a6b218aa688fd33cb39bd4679137e202e3</originalsourceid><addsrcrecordid>eNp1kc1v1DAQxS0EokvhyBX5yCXU9iT-ECfUlrZSJSRaztasMwFDNgl2sqj_PV5tt3uqL_Z4fm_85MfYeyk-KajFmRBCNmVVstb2BVtJ3chKica8ZKtdr9o1T9ibnH-XUjXSvmYnCoQDJdWK3V_Qlvpx2tAw87HjyEMfhxiw53cBhzYOuI048EQ_Y57TA-_GxH_FNmFLQ5xj5nmZpiXhHLf4mV_f3H2_vHrLXnXYZ3r3uJ-yH18v78-vq9tvVzfnX26rUNcwV2RsAxrIunXrIECNSNZQQGOM0w71WkmLqK3tWoCwhsLV2jgJhpRQBKes2s_N_2ha1n5KcYPpwY8Y_ePVn3Ii3wAYVxfePctPaWyPooNQKm0bDVYW7Ye9NqTyEXHww5jQSyHAeC2ULsDHPVAm_V0oz34Tc6C-x4HGJXsJ2imQzsHRd0hjzom6JydS-F2q_pCq36V6fLuY21D7RB9ihP9Y75vw</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>1369231993</pqid></control><display><type>article</type><title>Development of a clinical Scandinavian registry for hidradenitis suppurativa; HISREG</title><source>NORA - Norwegian Open Research Archives</source><creator>Ingvarsson, Gisli ; Dufour, Deidre Nathalie ; Killasli, Hassan ; Sartorius, Karin ; Lapins, Jan ; Skau, Philip A ; Moseng, Dagfinn ; Dinparvar, Darjosh ; Furberg, Anne-Sofie ; Jemec, Gregor B E ; Emtestam, Lennart</creator><creatorcontrib>Ingvarsson, Gisli ; Dufour, Deidre Nathalie ; Killasli, Hassan ; Sartorius, Karin ; Lapins, Jan ; Skau, Philip A ; Moseng, Dagfinn ; Dinparvar, Darjosh ; Furberg, Anne-Sofie ; Jemec, Gregor B E ; Emtestam, Lennart</creatorcontrib><description>Hidradenitis suppurativa (HS; or acne inversa) is a scarring and frequently persistent inflammatory disorder of the terminal hair follicles of apocrine gland-bearing skin in adults. Treatments include local or systemic antibiotics, hormones, retinoids and systemic immunosuppressive agents (1), although on evaluation these have been shown to have only limited or temporary effect. In refractory cases, surgery is necessary, and should be radical and performed as early as possible (2, 3). It is essential to establish a registry of HS in order to address the following important issues: to assess the safety and effectiveness of different treatments; to identify which specific patient subgroups have the best risk/benefit ratio for a given treatment; and to create benchmark data for quality assurance of the medical service. This manuscript presents the Scandinavian Registry for HS, HISREG.</description><identifier>ISSN: 0001-5555</identifier><identifier>ISSN: 1651-2057</identifier><identifier>EISSN: 1651-2057</identifier><identifier>DOI: 10.2340/00015555-1468</identifier><identifier>PMID: 23093212</identifier><language>eng</language><publisher>Sweden: Taylor &amp; Francis</publisher><subject>Community medicine, Social medicine: 801 ; Health sciences: 800 ; Health service and health administration research: 806 ; Helsefag: 800 ; Helsetjeneste- og helseadministrasjonsforskning: 806 ; Hidradenitis Suppurativa - diagnosis ; Hidradenitis Suppurativa - epidemiology ; Hidradenitis Suppurativa - therapy ; Humans ; Medical disciplines: 700 ; Medicin och hälsovetenskap ; Medisinske Fag: 700 ; Program Development ; Registries ; Research Design ; Samfunnsmedisin, sosialmedisin: 801 ; Scandinavian and Nordic Countries - epidemiology ; Severity of Illness Index ; Treatment Outcome ; VDP</subject><ispartof>Acta dermato-venereologica, 2013-01, Vol.93 (3), p.350-351</ispartof><rights>info:eu-repo/semantics/openAccess</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c443t-e785363e89bd93c34aae87eca777969a6b218aa688fd33cb39bd4679137e202e3</citedby></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>230,780,885,26567</link.rule.ids><linktorsrc>$$Uhttp://hdl.handle.net/10037/6026$$EView_record_in_NORA$$FView_record_in_$$GNORA$$Hfree_for_read</linktorsrc><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/23093212$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink><backlink>$$Uhttp://kipublications.ki.se/Default.aspx?queryparsed=id:126856381$$DView record from Swedish Publication Index$$Hfree_for_read</backlink></links><search><creatorcontrib>Ingvarsson, Gisli</creatorcontrib><creatorcontrib>Dufour, Deidre Nathalie</creatorcontrib><creatorcontrib>Killasli, Hassan</creatorcontrib><creatorcontrib>Sartorius, Karin</creatorcontrib><creatorcontrib>Lapins, Jan</creatorcontrib><creatorcontrib>Skau, Philip A</creatorcontrib><creatorcontrib>Moseng, Dagfinn</creatorcontrib><creatorcontrib>Dinparvar, Darjosh</creatorcontrib><creatorcontrib>Furberg, Anne-Sofie</creatorcontrib><creatorcontrib>Jemec, Gregor B E</creatorcontrib><creatorcontrib>Emtestam, Lennart</creatorcontrib><title>Development of a clinical Scandinavian registry for hidradenitis suppurativa; HISREG</title><title>Acta dermato-venereologica</title><addtitle>Acta Derm Venereol</addtitle><description>Hidradenitis suppurativa (HS; or acne inversa) is a scarring and frequently persistent inflammatory disorder of the terminal hair follicles of apocrine gland-bearing skin in adults. Treatments include local or systemic antibiotics, hormones, retinoids and systemic immunosuppressive agents (1), although on evaluation these have been shown to have only limited or temporary effect. In refractory cases, surgery is necessary, and should be radical and performed as early as possible (2, 3). It is essential to establish a registry of HS in order to address the following important issues: to assess the safety and effectiveness of different treatments; to identify which specific patient subgroups have the best risk/benefit ratio for a given treatment; and to create benchmark data for quality assurance of the medical service. This manuscript presents the Scandinavian Registry for HS, HISREG.</description><subject>Community medicine, Social medicine: 801</subject><subject>Health sciences: 800</subject><subject>Health service and health administration research: 806</subject><subject>Helsefag: 800</subject><subject>Helsetjeneste- og helseadministrasjonsforskning: 806</subject><subject>Hidradenitis Suppurativa - diagnosis</subject><subject>Hidradenitis Suppurativa - epidemiology</subject><subject>Hidradenitis Suppurativa - therapy</subject><subject>Humans</subject><subject>Medical disciplines: 700</subject><subject>Medicin och hälsovetenskap</subject><subject>Medisinske Fag: 700</subject><subject>Program Development</subject><subject>Registries</subject><subject>Research Design</subject><subject>Samfunnsmedisin, sosialmedisin: 801</subject><subject>Scandinavian and Nordic Countries - epidemiology</subject><subject>Severity of Illness Index</subject><subject>Treatment Outcome</subject><subject>VDP</subject><issn>0001-5555</issn><issn>1651-2057</issn><issn>1651-2057</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2013</creationdate><recordtype>article</recordtype><sourceid>3HK</sourceid><recordid>eNp1kc1v1DAQxS0EokvhyBX5yCXU9iT-ECfUlrZSJSRaztasMwFDNgl2sqj_PV5tt3uqL_Z4fm_85MfYeyk-KajFmRBCNmVVstb2BVtJ3chKica8ZKtdr9o1T9ibnH-XUjXSvmYnCoQDJdWK3V_Qlvpx2tAw87HjyEMfhxiw53cBhzYOuI048EQ_Y57TA-_GxH_FNmFLQ5xj5nmZpiXhHLf4mV_f3H2_vHrLXnXYZ3r3uJ-yH18v78-vq9tvVzfnX26rUNcwV2RsAxrIunXrIECNSNZQQGOM0w71WkmLqK3tWoCwhsLV2jgJhpRQBKes2s_N_2ha1n5KcYPpwY8Y_ePVn3Ii3wAYVxfePctPaWyPooNQKm0bDVYW7Ye9NqTyEXHww5jQSyHAeC2ULsDHPVAm_V0oz34Tc6C-x4HGJXsJ2imQzsHRd0hjzom6JydS-F2q_pCq36V6fLuY21D7RB9ihP9Y75vw</recordid><startdate>20130101</startdate><enddate>20130101</enddate><creator>Ingvarsson, Gisli</creator><creator>Dufour, Deidre Nathalie</creator><creator>Killasli, Hassan</creator><creator>Sartorius, Karin</creator><creator>Lapins, Jan</creator><creator>Skau, Philip A</creator><creator>Moseng, Dagfinn</creator><creator>Dinparvar, Darjosh</creator><creator>Furberg, Anne-Sofie</creator><creator>Jemec, Gregor B E</creator><creator>Emtestam, Lennart</creator><general>Taylor &amp; Francis</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>3HK</scope><scope>ADTPV</scope><scope>AOWAS</scope><scope>D8T</scope><scope>ZZAVC</scope></search><sort><creationdate>20130101</creationdate><title>Development of a clinical Scandinavian registry for hidradenitis suppurativa; HISREG</title><author>Ingvarsson, Gisli ; Dufour, Deidre Nathalie ; Killasli, Hassan ; Sartorius, Karin ; Lapins, Jan ; Skau, Philip A ; Moseng, Dagfinn ; Dinparvar, Darjosh ; Furberg, Anne-Sofie ; Jemec, Gregor B E ; Emtestam, Lennart</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c443t-e785363e89bd93c34aae87eca777969a6b218aa688fd33cb39bd4679137e202e3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2013</creationdate><topic>Community medicine, Social medicine: 801</topic><topic>Health sciences: 800</topic><topic>Health service and health administration research: 806</topic><topic>Helsefag: 800</topic><topic>Helsetjeneste- og helseadministrasjonsforskning: 806</topic><topic>Hidradenitis Suppurativa - diagnosis</topic><topic>Hidradenitis Suppurativa - epidemiology</topic><topic>Hidradenitis Suppurativa - therapy</topic><topic>Humans</topic><topic>Medical disciplines: 700</topic><topic>Medicin och hälsovetenskap</topic><topic>Medisinske Fag: 700</topic><topic>Program Development</topic><topic>Registries</topic><topic>Research Design</topic><topic>Samfunnsmedisin, sosialmedisin: 801</topic><topic>Scandinavian and Nordic Countries - epidemiology</topic><topic>Severity of Illness Index</topic><topic>Treatment Outcome</topic><topic>VDP</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Ingvarsson, Gisli</creatorcontrib><creatorcontrib>Dufour, Deidre Nathalie</creatorcontrib><creatorcontrib>Killasli, Hassan</creatorcontrib><creatorcontrib>Sartorius, Karin</creatorcontrib><creatorcontrib>Lapins, Jan</creatorcontrib><creatorcontrib>Skau, Philip A</creatorcontrib><creatorcontrib>Moseng, Dagfinn</creatorcontrib><creatorcontrib>Dinparvar, Darjosh</creatorcontrib><creatorcontrib>Furberg, Anne-Sofie</creatorcontrib><creatorcontrib>Jemec, Gregor B E</creatorcontrib><creatorcontrib>Emtestam, Lennart</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>NORA - Norwegian Open Research Archives</collection><collection>SwePub</collection><collection>SwePub Articles</collection><collection>SWEPUB Freely available online</collection><collection>SwePub Articles full text</collection><jtitle>Acta dermato-venereologica</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext_linktorsrc</fulltext></delivery><addata><au>Ingvarsson, Gisli</au><au>Dufour, Deidre Nathalie</au><au>Killasli, Hassan</au><au>Sartorius, Karin</au><au>Lapins, Jan</au><au>Skau, Philip A</au><au>Moseng, Dagfinn</au><au>Dinparvar, Darjosh</au><au>Furberg, Anne-Sofie</au><au>Jemec, Gregor B E</au><au>Emtestam, Lennart</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Development of a clinical Scandinavian registry for hidradenitis suppurativa; HISREG</atitle><jtitle>Acta dermato-venereologica</jtitle><addtitle>Acta Derm Venereol</addtitle><date>2013-01-01</date><risdate>2013</risdate><volume>93</volume><issue>3</issue><spage>350</spage><epage>351</epage><pages>350-351</pages><issn>0001-5555</issn><issn>1651-2057</issn><eissn>1651-2057</eissn><abstract>Hidradenitis suppurativa (HS; or acne inversa) is a scarring and frequently persistent inflammatory disorder of the terminal hair follicles of apocrine gland-bearing skin in adults. Treatments include local or systemic antibiotics, hormones, retinoids and systemic immunosuppressive agents (1), although on evaluation these have been shown to have only limited or temporary effect. In refractory cases, surgery is necessary, and should be radical and performed as early as possible (2, 3). It is essential to establish a registry of HS in order to address the following important issues: to assess the safety and effectiveness of different treatments; to identify which specific patient subgroups have the best risk/benefit ratio for a given treatment; and to create benchmark data for quality assurance of the medical service. This manuscript presents the Scandinavian Registry for HS, HISREG.</abstract><cop>Sweden</cop><pub>Taylor &amp; Francis</pub><pmid>23093212</pmid><doi>10.2340/00015555-1468</doi><tpages>2</tpages><oa>free_for_read</oa></addata></record>
fulltext fulltext_linktorsrc
identifier ISSN: 0001-5555
ispartof Acta dermato-venereologica, 2013-01, Vol.93 (3), p.350-351
issn 0001-5555
1651-2057
1651-2057
language eng
recordid cdi_cristin_nora_10037_6026
source NORA - Norwegian Open Research Archives
subjects Community medicine, Social medicine: 801
Health sciences: 800
Health service and health administration research: 806
Helsefag: 800
Helsetjeneste- og helseadministrasjonsforskning: 806
Hidradenitis Suppurativa - diagnosis
Hidradenitis Suppurativa - epidemiology
Hidradenitis Suppurativa - therapy
Humans
Medical disciplines: 700
Medicin och hälsovetenskap
Medisinske Fag: 700
Program Development
Registries
Research Design
Samfunnsmedisin, sosialmedisin: 801
Scandinavian and Nordic Countries - epidemiology
Severity of Illness Index
Treatment Outcome
VDP
title Development of a clinical Scandinavian registry for hidradenitis suppurativa; HISREG
url http://sfxeu10.hosted.exlibrisgroup.com/loughborough?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2024-12-25T02%3A10%3A26IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_3HK&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Development%20of%20a%20clinical%20Scandinavian%20registry%20for%20hidradenitis%20suppurativa;%20HISREG&rft.jtitle=Acta%20dermato-venereologica&rft.au=Ingvarsson,%20Gisli&rft.date=2013-01-01&rft.volume=93&rft.issue=3&rft.spage=350&rft.epage=351&rft.pages=350-351&rft.issn=0001-5555&rft.eissn=1651-2057&rft_id=info:doi/10.2340/00015555-1468&rft_dat=%3Cproquest_3HK%3E1369231993%3C/proquest_3HK%3E%3Cgrp_id%3Ecdi_FETCH-LOGICAL-c443t-e785363e89bd93c34aae87eca777969a6b218aa688fd33cb39bd4679137e202e3%3C/grp_id%3E%3Coa%3E%3C/oa%3E%3Curl%3E%3C/url%3E&rft_id=info:oai/&rft_pqid=1369231993&rft_id=info:pmid/23093212&rfr_iscdi=true