Development and validation of a questionnaire to assess young patients' experiences with diabetes care and transition

Aim To describe the development and validation of a questionnaire in a national Norwegian population‐based cohort study designed to assess the experiences of young people with type 1 diabetes who had made the transition from paediatric to adult diabetes care. Methods The questionnaire was developed...

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Bibliographic Details
Published in:Acta Paediatrica 2020-10, Vol.109 (10), p.2057-2066
Main Authors: Hodnekvam, Kristin, Iversen, Hilde H., Brunborg, Cathrine, Skrivarhaug, Torild
Format: Article
Language:English
Subjects:
Adolescent
adolescent health care
Adult
Child
Children
Cognitive ability
Cohort Studies
Diabetes
Diabetes Mellitus
Diabetes mellitus (insulin dependent)
Factor analysis
Female
Humans
Male
Norway
Population studies
Psychometrics
questionnaire
Questionnaires
Reproducibility
Reproducibility of Results
Surveys and Questionnaires
transition
type 1 diabetes
Validation studies
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Summary:Aim To describe the development and validation of a questionnaire in a national Norwegian population‐based cohort study designed to assess the experiences of young people with type 1 diabetes who had made the transition from paediatric to adult diabetes care. Methods The questionnaire was developed by the authors based on literature searches, focus group interviews, discussions with experts and cognitive interviews. We included 776 individuals with type 1 diabetes who were last registered in the Norwegian Childhood Diabetes Registry between 2009 and 2012 and had been receiving adult health care for at least 2 years. The data quality was analysed, factor analysis was performed, and the internal reliability, test‐retest reliability and construct validity were determined. Results The response rate was 321 patients (41.4%); 57.6% were female, and the average age at recruitment was 22.9 ± 1.2 years. Seven factors were identified. Satisfactory evidence was provided for the internal consistency, reliability and construct validity of the questionnaire. All scales met the criterion of Cronbach's alpha above 0.4. The test‐retest correlations ranged from 0.64 to 0.92. Conclusion The thorough validation of the questionnaire proved satisfactory and indicated that it may be of value for further studies measuring patients' experiences with diabetes care and transition.
ISSN:0803-5253
1651-2227
DOI:10.1111/apa.15205