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Perception of quality of life in caregivers of patients with dementia

Individuals with dementia suffer from changes at a cognitive, emotional, and behavioural level. These changes can also affect the quality of life of their caregivers in a physical, psychological, social and spiritual dimension. Determine the perception of life quality, taking into account the burden...

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Published in:Revista Científica de la Sociedad de Enfermería Neurológica (English ed.) 2017-07, Vol.46, p.26-31
Main Authors: Perdomo-Romero, Alix Yaneth, Ramírez-Perdomo, Claudia Andrea
Format: Article
Language:English
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Summary:Individuals with dementia suffer from changes at a cognitive, emotional, and behavioural level. These changes can also affect the quality of life of their caregivers in a physical, psychological, social and spiritual dimension. Determine the perception of life quality, taking into account the burden of caregivers of patients with dementia. A descriptive, correlational and cross-sectional study was conducted on an intentional sample of 50 caregivers of patients diagnosed with dementia. The information was collected using three tools: socio-demographic variables, quality of life, and dimension of caregiver's burden. The sample consisted of 80% women, with an age range of 36–59 years, of whom 54% were married. More than three-quarters (78%) of them had been a caregiver for more than 37 months, and 66% dedicated 24h to the work of caring. The main caregivers experience a low care burden and low effect on their quality of life. The study shows the presence of women in the role of caregivers, the relationship between the quality life and burden, and how they are influenced by the physical and psychological dimensions. Similarly, a low social well-being negatively influences the quality life. La demencia es una enfermedad que produce en la persona que la presenta cambios a nivel cognitivo, afectivo y comportamental, estas alteraciones pueden afectar la calidad de vida del cuidador en sus dimensiones físicas, psicológicas, sociales y espirituales. Determinar la percepción de la calidad de vida, teniendo en cuenta la sobrecarga en cuidadores de pacientes con demencia. Estudio descriptivo, correlacional, transversal, muestra intencional con 50 cuidadores de pacientes diagnosticados con demencia; se recolectó la información mediante 3 instrumentos: caracterización sociodemográfica, calidad de vida y sobrecarga del cuidador. Mujeres en un 80%, con rango de edad de 36 a 59 años, 54% casados, 78% llevaba más de 37 meses como cuidador y 66% dedican 24h a la labor de cuidado; los cuidadores principales experimentan baja sobrecarga y baja afectación en su calidad de vida. El estudio muestra la presencia de las mujeres en el rol de cuidador, así como la relación entre la calidad de vida y la sobrecarga e influidos estos directamente por las dimensiones física y psicológica. De igual forma, un bajo bienestar social influye de manera negativa en la calidad de vida.
ISSN:2530-299X
2530-299X
DOI:10.1016/j.sedeng.2017.09.001