Social support, quality of life and activities of daily living in patients with myasthenia gravis in Spain and Latin America

To determine the relationship of perceived social support with clinical variables, the profile of activities of daily living and quality of life in patients diagnosed with myasthenia gravis living in Spain and Latin America. Observational, cross-sectional study. Subjects diagnosed with myasthenia gr...

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Bibliographic Details
Published in:Revista Científica de la Sociedad de Enfermería Neurológica (English ed.) 2024-05, Vol.59, p.9-18
Main Authors: Larrosa-Dominguez, Mireia, Reverté-Villarroya, Sílvia
Format: Article
Language:English
Subjects:
Actividades de la vida diaria
Activities of daily living
Calidad de vida
Chronic disease
Enfermedad crónica
Enfermedad neuromuscular
Enfermería
Miastenia gravis
Myasthenia gravis
Neuromuscular disease
Nursing
Quality of life
Social support
Soporte social
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Summary:To determine the relationship of perceived social support with clinical variables, the profile of activities of daily living and quality of life in patients diagnosed with myasthenia gravis living in Spain and Latin America. Observational, cross-sectional study. Subjects diagnosed with myasthenia gravis were recruited from associations, foundations and social media in the first quarter of 2022. The Medical Outcomes Study (MOS-SSS), the Myasthenia gravis activities of daily living profile (MG-ADL) and the 15-item Myasthenia Gravis Quality of Life scale revised (MG-QOL15R-S) instruments were included. Mean time to diagnosis (t = 2,38; P 
ISSN:2530-299X
2530-299X
DOI:10.1016/j.sedeng.2024.05.001