Co-developing The Canadian MPS Registry: A longitudinal rare disease patient registry

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Bibliographic Details
Published in:Molecular genetics and metabolism 2024-02, Vol.141 (2), p.107964, Article 107964
Main Authors: Mitchell, John J., Inbar-Feigenberg, Michal, Angel, Kim, Chakraborty, Pranesh, Lamoureux, Monica, Adams, John, Potter, Beth K., Stockler-Ipsirolgu, Sylvia, Howie, Alison H., Pace, Alex, Butcher, Nancy J., Greenberg, Cheryl, Hayeems, Robin, Laberge, Anne-Marie, Round, Jeff, Offringa, Martin, Oskoui, Maryam, Ruth, Chelsea, Schulze, Andreas, Speechley, Kathy, Thavorn, Kednapa, Trakadis, Yannis, Wilson, Kumanan, Lacaze, Thierry
Format: Article
Language:English
Online Access:Get full text
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ISSN:1096-7192
1096-7206
DOI:10.1016/j.ymgme.2023.107964