Awareness and handoffs in home care: coordination among informal caregivers

Informal caregivers, such as family members and friends, are important for maintaining the health and wellness of the elderly and the chronically ill. However, the complexity of informal caregiving has been under-studied in prior research. In this study, we attempt to answer two main questions - wha...

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Bibliographic Details
Published in:Behaviour & information technology 2018-01, Vol.37 (1), p.66-86
Main Authors: Tang, Charlotte, Chen, Yunan, Cheng, Karen, Ngo, Victor, Mattison, John E.
Format: Article
Language:English
Subjects:
Adaptive technology
awareness
care coordination
Caregivers
Coordination
handoff
Home health care
Informal caregivers
Older people
Questions
tension
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Summary:Informal caregivers, such as family members and friends, are important for maintaining the health and wellness of the elderly and the chronically ill. However, the complexity of informal caregiving has been under-studied in prior research. In this study, we attempt to answer two main questions - what makes the coordination of patient care so difficult among multiple informal caregivers, and what are the challenges that should be considered in designing technologies to facilitate informal care coordination? To answer these questions, we conducted a qualitative interview study with 15 individuals with caregiving experience. The findings of the study identified the main challenges faced by caregivers in maintaining awareness, coordinating handoffs among informal caregivers, and easing tensions among caregivers and patients. These findings revealed considerations unique for informal caregiver coordination, and helped inform the design of technologies to support the care coordination.
ISSN:0144-929X
1362-3001
DOI:10.1080/0144929X.2017.1405073