Young people's experiences using electric powered indoor - outdoor wheelchairs (EPIOCs): Potential for enhancing users' development?

• Published in: Disability and rehabilitation 2007-01, Vol.29 (16), p.1281-1294
• Main Authors: Evans, Subhadra, Neophytou, Claudius, de Souza, Lorraine, Frank, Andrew O.
• Format: Article
• Language: English
• Subjects: accidents; Activities of Daily Living; Adolescent; carers; cerebral palsy; Child; Consumer satisfaction; Disabled Children - rehabilitation; Disabled young people; Electricity; Equipment Design; Equipment Failure; Equipment Safety; Female; Humans; Male; muscular dystrophy; pain; Patient Satisfaction; Powered wheelchairs; Rehabilitation; safety; Selfpropelled wheelchairs; sport; State Medicine; Surveys and Questionnaires; United Kingdom; user satisfaction; Wheelchairs
• ISSN: 0963-8288; 1464-5165
• DOI: 10.1080/09638280600964406

Purpose. To examine the experiences of severely physically disabled young people who use electric powered indoor - outdoor chairs (EPIOCs). Methods. A priori interview questions examined young people's functioning with EPIOCs, pain and discomfort with EPIOC use and accidents or injuries resulting from EPIOC use. Eighteen young people (13 males and five females) aged 10 - 18 (mean 15) years were interviewed by telephone using a qualitative framework approach. Participants were interviewed 10 - 19 (mean 14.5) months after delivery of the chair. Diagnoses included muscular dystrophy (n = 10), cerebral palsy (n = 5), and 'other' (n = 3). Results. Many children reported positive functioning following EPIOC use, including increased independence and social activities like wheelchair football. However, EPIOC use was also associated with pain and discomfort, as well as perceived lack of safety, and minor accidents. Most young people and their families were fairly satisfied with the service and provision of their wheelchairs. Conclusions. The findings suggest that the development of disabled young people may benefit from the use of electric powered indoor outdoor wheelchairs, although the advantages may come at certain costs to young people's perceived and real safety. Recommendations to powered wheelchair providers include the demonstrated need for additional driving training as these young people mature.