Predictors and consequences of perceived lack of choice in becoming an informal caregiver

Objectives: Using data from a national sample of informal caregivers to older adults, we identify predictors of lack of choice and the consequences of lack of choice in taking on the caregiving role. Methods: A national telephone survey with 1397 caregivers was carried out to assess whether responde...

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Bibliographic Details
Published in:Aging & mental health 2012-08, Vol.16 (6), p.712-721
Main Authors: Schulz, Richard, Beach, Scott R., Cook, Thomas B., Martire, Lynn M., Tomlinson, Jennifer M., Monin, Joan K.
Format: Article
Language:English
Subjects:
Adolescent
Adult
Age Factors
Aged
Aged, 80 and over
caregiver health
Caregivers - psychology
Carers
Caring
Choice
Choice Behavior
consumer choice
Consumer preferences
Data Collection
Decision Making
Demographic aspects
Depression
Educational Status
Female
Forecasting
Health
Humans
Informal care
informal caregiving
Internal-External Control
Male
Mental health
Mental stress
Middle Aged
Psychological wellbeing
Quantitative analysis
Risk Factors
Sex Factors
Stress, Psychological
United States
Well-being
Young Adult
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Summary:Objectives: Using data from a national sample of informal caregivers to older adults, we identify predictors of lack of choice and the consequences of lack of choice in taking on the caregiving role. Methods: A national telephone survey with 1397 caregivers was carried out to assess whether respondents had a choice in taking on the caregiving role, their demographic characteristics, the nature and duration of their caregiving experience, and its impact on their physical and psychological well-being. We compare caregivers who felt they had no choice in taking on the caregiving role to those who did. Results: In total, 44% of caregivers reported a lack of choice in taking on the caregiving role. Highly educated, older caregivers caring for a younger care recipient with emotional or behavioral problems were most likely to report that they had no choice in taking on the caregiving role. Lack of choice is associated with higher levels of emotional stress, physical strain, and negative health impacts, after controlling for multiple confounds including level of care provided, relationship type, primary health condition of the care recipient, and demographic characteristics. Conclusion: Lack of choice is an independent risk factor for the negative effects of caregiving, and clinicians should be vigilant to lack of choice as a marker of caregiver distress.
ISSN:1360-7863
1364-6915
DOI:10.1080/13607863.2011.651439