Strategies on personalized medicine and the power of the imagined public

Personalized medicine has become a central focus of health and innovation policies in many countries. It is a complex policy field which, in the pursuit of both health and wealth, brings together technology, new data use, and medical care. The aim of this paper is to analyze how the notion of person...

Full description

Saved in:
Bibliographic Details
Published in:New genetics and society 2023, Vol.42 (1)
Main Authors: Groth Jensen, Lotte, Svendsen, Mette N., Snell, Karoliina
Format: Article
Language:English
Subjects:
data collection
document analyze
health policy
Health services
imagined public
Medical technology
Medicine
personalized medicine
Precision medicine
public trust
Strategies
strategy development
welfare state
Citations: Items that this one cites
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:Personalized medicine has become a central focus of health and innovation policies in many countries. It is a complex policy field which, in the pursuit of both health and wealth, brings together technology, new data use, and medical care. The aim of this paper is to analyze how the notion of personalized medicine has evolved, and what publics are implied in the political mobilization of the concept. We answer these questions based on a document analysis of Danish strategy papers in the period 2014-2021 and expert interviews. We identify different strategy actors driving the process, shifts in topics during the strategy process, as well as different imaginaries of the public. We argue that each group of strategy actors act with a particular public in mind and that these influence how personalized medicine is envisioned. If the relationship between strategy development and the imagined publics remains unknown, it can pose a democratic problem.
ISSN:1463-6778
1469-9915
DOI:10.1080/14636778.2023.2260939