Direct health costs of amyotrophic lateral sclerosis in a multidisciplinary ALS unit in Catalonia (Spain)

• Published in: Amyotrophic lateral sclerosis and frontotemporal degeneration 2023-02, Vol.24 (1-2), p.133-138
• Main Authors: Mora, Toni, Domínguez, Raúl, Assialioui, Abdelilah, Paipa, Andrés, Moreno, Ramon, Corbella, Xavier, Martínez-Yelamos, Antonio, Povedano, Mònica
• Format: Article
• Language: English
• Subjects: Amyotrophic lateral sclerosis; Amyotrophic Lateral Sclerosis - therapy; Health Care Costs; health economics; Humans; multidisciplinary ALS care; Spain
• ISSN: 2167-8421; 2167-9223
• DOI: 10.1080/21678421.2022.2080560

Our research project computed the direct health costs of patients with amyotrophic lateral sclerosis (ALS) in a Spanish multidisciplinary unit and explored the main factors associated. Besides analyzing a context with universal health care provision, we used an administrative health care dataset from the most crucial center unit treating ALS in Catalonia (80% of total patients). Our results show that the direct health cost of caring for an ALS patient in our unit was 5,158€per patient/year. This cost was not influenced by the onset of the disease, sex or age, but it increased if the patient lived near our center since this facilitates the frequency of follow-up visits. Finally, the higher the educational level, the lower the direct health costs.