P0787THE IMPORTANCE AND BENEFITS OF THE REGISTRY OF PREDIALYSIS PATIENTS - ROMANIAN EXPERIENCE

• Published in: Nephrology, dialysis, transplantation dialysis, transplantation, 2020-06, Vol.35 (Supplement_3)
• Main Authors: PERIDE, Ileana, NICULAE, Andrei, CHECHERITA, Ionel Alexandru
• Format: Article
• Language: English
• ISSN: 0931-0509; 1460-2385
• DOI: 10.1093/ndt/gfaa142.P0787

Abstract Background and Aims Registries provide an organized and standardized method to systematically collect observational data about specific groups of patients managed in routine clinical practice for a predetermined objective. Data collected by patient registries may help researchers develop hypotheses about disease mechanisms or treatment approaches and inform health care policy thereby potentially improving quality. It is known that chronic kidney disease (CKD) represents the 6th cause of mortality worldwide and it has an increased prevalence. Therefore, the aim of our Registry is to collect epidemiological and medical data regarding the CKD patients from our country in order to drive improvements in health care quality. Method Starting from January 2019, all Romanian nephrologist have been collecting demographic and medical data CKD-related from patients diagnosed with CKD stages 1-5. These data are introduced in a special designed software program – ReNal – that is easy to be accessed. The demographic and medical information include: ID, gender, age, region, body mass index, CKD etiology, comorbidities, chronic treatment, CKD stage, laboratory test, such as serum creatinine, urea, uric acid, calcium, phosphates, iPTH, albuminuria, proteinuria, glomerular filtration rate, hemoglobin etc. (results collected from each medical assessment). Results During almost 1-year, over 10000 patients with CKD stages 1-5 were introduced in our Registry, with mean age of 69.2 ± 3.5, 51.22% female patients, 48.78% male patients. From our preliminary results, hypertension and diabetes mellitus represent the main cause of CKD in Romania, according with the international data. In addition, CKD stages 3b and 4 were highly represented. These are part of the preliminary results, future data will be available. Conclusion Analyzing the assessed data from our Registry, in future several key points could be achieved: the importance of a correct financial appraisal sustained by health system, adequate and active assessment of CKD patients including the complications, highlighting the disease progression rate depending on the recommended treatment, designing an efficient prevention program.