“It put control back onto my family situation”: family experiences of positive behaviour support

• Published in: Advances in mental health and intellectual disabilities 2019-07, Vol.13 (3/4), p.91-101
• Main Authors: Botterill, Sinead, Cottam, Susan, Fowke, Alex, Theodore, Kate
• Format: Article
• Language: English
• Subjects: Autism; Behavior disorders; Behavior problems; Best practice; Child & adolescent psychiatry; Child psychology; Community Relations; Developmental disabilities; Families & family life; Family Involvement; Family Needs; Functional Behavioral Assessment; Intellectual disabilities; Intervention; Interviews; Learning disabled people; Meta Analysis; Participant Characteristics; Positive behavior support; Qualitative research; Quality of life; Relatives; Research Methodology; Resistance (Psychology); Semi Structured Interviews; Stakeholders; Structured Interviews; Support networks; Systematic review; Young Adults; Youth
• ISSN: 2044-1282; 2044-1290
• DOI: 10.1108/AMHID-11-2018-0049

Purpose Positive behaviour support (PBS) is currently considered best practice for managing challenging behaviour in young people with intellectual and developmental disabilities. A key principle of PBS is that all members of the person’s support network participate in the assessment and intervention. It is, therefore, important to understand what factors act as facilitators or barriers to family engagement; however, research in this area is limited. The purpose of this paper is to conduct a novel piece of qualitative research analysis into experiences of family members of young people who have received family-based PBS. Design/methodology/approach Eight parents of a young person with an intellectual or developmental disability who had received PBS were interviewed about their experiences and factors they found helpful and hindering in terms of their engagement. Thematic analysis allowed a detailed and robust interpretation of the qualitative data. Findings Five superordinate themes were identified, namely, PBS is more than just strategies, considering the family context, the therapist/family relationship, acknowledging challenges and the ongoing nature of the problem and supporting family member change. Research limitations/implications Although research was rigorously conducted, the small sample size mean findings should be considered preliminary. Originality/value The literature related to family engagement in PBS is limited and largely based on the opinions of professionals. This study identified factors that parents themselves felt were helpful and hindering in terms of their engagement and offers practical suggestions for services and future research.