Validation of the dermatology‐specific proxy instrument the Infants and Toddlers Dermatology Quality of Life

Background The first dermatology‐specific proxy health‐related quality of life (HRQoL) instrument for children 0–4 years old with skin diseases, the Infants and Toddlers Dermatology Quality of Life (InToDermQoL), was recently developed. In order to avoid the problem of cross‐cultural inequivalence f...

Full description

Saved in:
Bibliographic Details
Published in:Journal of the European Academy of Dermatology and Venereology 2019-07, Vol.33 (7), p.1405-1411
Main Authors: Chernyshov, P.V., Sampogna, F., Pustišek, N., Marinovic, B., Manolache, L., Suru, A., Salavastru, C.M., Tiplica, G.S., Stoleriu, G., Kakourou, T., Alexopoulos, A., Nasi, L., Szepietowski, J.C., Trzeciak, M., Nowicki, R.J., Chubar, O.V., Chernyshov, A.V., Pochynok, T.V.
Format: Article
Language:English
Subjects:
Child, Preschool
Dermatology
Europe
Female
Humans
Infant
Infant, Newborn
Language
Male
Parents
Proxy
Psychometrics
Quality of Life
Reproducibility of Results
Severity of Illness Index
Skin Diseases - complications
Surveys and Questionnaires
Citations: Items that this one cites
Items that cite this one
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:Background The first dermatology‐specific proxy health‐related quality of life (HRQoL) instrument for children 0–4 years old with skin diseases, the Infants and Toddlers Dermatology Quality of Life (InToDermQoL), was recently developed. In order to avoid the problem of cross‐cultural inequivalence focus groups work and pilot tests were organized simultaneously in all national centres of the project. The InToDermQoL showed good comprehensibility, clarity and acceptance. Objective To validate the InToDermQoL questionnaire during international field tests. Methods Internal consistency, test–retest reliability, convergent and discriminant validity of the InToDermQoL questionnaire were checked during international field tests. Results Parents of 473 children with skin diseases filled in the national language versions of the InToDermQoL questionnaire. All three age‐specific versions of the InToDermQoL questionnaire with 10, 12 and 15 items, respectively, showed high internal consistency (Cronbach's α 0.90–0.93), good test–retest reliability (correlation coefficients > 0.9), significant correlations with the most widely used atopic dermatitis‐specific proxy instrument, the Infants Dermatitis Quality of Life Index (correlation coefficients 0.68–0.79). The InToDermQoL versions for children
ISSN:0926-9959
1468-3083
DOI:10.1111/jdv.15496