Abstract A55: Assessing the applicability of leventhal's common sense model of illness representation to explain african american prostate cancer survivors' disease experiences and disease Management Strategies

• Published in: Cancer epidemiology, biomarkers & prevention biomarkers & prevention, 2017-02, Vol.26 (2_Supplement), p.A55-A55
• Main Authors: Johnson, Jarrett, Pandeya, Sarbesh, Kabore, Ahmed, Ross, Levi
• Format: Article
• Language: English
• ISSN: 1055-9965; 1538-7755
• DOI: 10.1158/1538-7755.DISP16-A55

Background: Culture has a major influence on many aspects of health in general, and cancer prevention and control in particular. Culture influences the receptiveness of consensus and evidence-based risk reduction strategies across the continuum of care. Culture also provides men with templates for interacting with clinicians and the health care system. Over the past two decades, medical and public health practitioners have devoted a great deal of attention to understanding how African American culture influences the multi-level processes that create or maintain prostate cancer treatment disparities. The current study adds to this growing body of literature by exploring the usefulness of Leventhal's Common Sense Model (CSM) of Illness Representation to explain the content and structure of African American prostate cancer survivors' narratives of their disease process and disease management strategies. Narrative structure was evaluated using the five illness representation domains of the CSM (i.e., cause, control/cure, consequences, identity, and, timeline). Narrative content was explored using investigator created sub-themes representing each illness representation domain. Methods: A purposive sample of prostate cancer survivors was recruited via cancer registries, word-of-mouth and newspaper advertisements in New York and Georgia from 2013 to 2014. Survivors were eligible to participate if they were diagnosed with localized prostate cancer (T1 or T2), able to speak and understand English, and self-identified as African American. Each participant completed a semi-structured, in-depth interview with a graduate trained interviewer. All men provided written informed consent and received a $50 incentive for their participation. Each interview was audiotape recorded, transcribed verbatim by a professional transcriptionist and entered into MAXQDA12 software for data management and analysis. All transcribed interviews were coded independently by a three-member team until a minimum of 80% coding agreement was reached. Results: A total of 15 men completed in-depth interviews. All interviews lasted between 30 - 90 minutes. With regard to narrative structure, survivors provided descriptions characterizing all five of the illness representation domains. More survivors provided descriptions relating to causes and consequences, while fewer provided descriptions related to the timeline domain. With regard to coping, many interviewees reported that it was challenging to si