Multidisciplinary care for children with cleft lip and palate and their families: Family-Centered Care

• Published in: Revista Gaúcha de Enfermagem 2024-01, Vol.45
• Main Authors: Mori, Mariana Martire, Piran, Camila Moraes Garollo, Cargnin, Alana Vitoria Escritori, Caetano, Geovanna Mazia, Tofalini, Ana Claudia, Rodrigues, Thamires Fernandes Cardoso da Silva, Merino, Maria de Fátima Garcia Lopes, Furtado, Marcela Demitto
• Format: Article
• Language: English
• Subjects: Child; Cleft lip; Cleft palate; Family; Multidisciplinary team
• ISSN: 0102-6933; 1983-1447
• DOI: 10.1590/1983-1447.2024.20230276.en

ABSTRACT Objective: To understand the multidisciplinary care provided to children with cleft lip and palate and their families. Method: Descriptive, exploratory and qualitative study, based on the theoretical-philosophical framework of Family-Centered Care, conducted with professionals from the multidisciplinary team of an association supporting individuals with cleft lip and palate. The data were processed using the Iramuteq® software and systematized using Similarity Analysis. The study was approved by the Ethics Committee under opinion no. 4,095,950. Results: Twelve professionals participated, in which the guiding thread for the construction of the classes was the link between the words: Child, Family, Treatment and Difficulty and the alignment with the principles of the Family-Centered Care philosophy, resulting in the following classes: 1. Portrait of assistance from the multidisciplinary team in caring for children and their families (Assistance and Monitoring); 2. Challenges experienced by the team in caring for children and their families (Barriers); and 3. Exercising their (essential) role as a member of the multidisciplinary team (Impact). Conclusion: Professionals who care for children with cleft lip and palate and their families encounter barriers during care. However, they provide support to family members and work collaboratively, from the perspective of family-centered care involving participation, dignity, respect, and information sharing. RESUMEN Objetivo: Comprender la atención multidisciplinaria brindada a niños con labio y paladar hendido y sus familias. Método: Estudio descriptivo, exploratorio y cualitativo, basado en el marco teórico-filosófico de la Atención Centrada en la Familia, realizado con profesionales del equipo multidisciplinario de una asociación de apoyo a labio y paladar hendido. Los datos fueron operacionalizados mediante el software Iramuteq® y sistematizados mediante Análisis de Similitud. Estudio aprobado por el Comité de Ética bajo dictamen n° 4.095.950. Resultados: Participaron 12 profesionales, en los cuales el hilo conductor para la construcción de las clases fue el vínculo entre las palabras: Niño, Familia, Tratamiento y Dificultad y la convergencia con los presupuestos de la filosofía del Cuidado Centrado en la Familia, dando como resultado las clases: 1 Retrato de asistencia del equipo multidisciplinario en el cuidado de los niños y sus familias (Asistencia y Seguimiento); 2. Desafíos experimentados por el equ