Participation as an Outcome in Multiple Sclerosis Falls-Prevention Research

• Published in: International journal of MS care 2014-12, Vol.16 (4), p.171-177
• Main Authors: Finlayson, Marcia, Peterson, Elizabeth, Matsuda, Patricia N.
• Format: Article
• Language: English
• ISSN: 1537-2073
• DOI: 10.7224/1537-2073.2014-053

Selecting the outcomes for an intervention trial is a key decision that influences many other aspects of the study design. One of the major tasks during the 3-day inaugural meeting of the International MS Falls Prevention Research Network was to identify the key outcomes for the falls-prevention intervention that was being designed by the Network members for testing across their multiple sites. Through a nominal group process, meeting participants described how engagement in important, meaningful everyday activities, beyond traditional basic and instrumental activities of daily living, should be a long-term outcome of a successful falls-prevention intervention for people with MS. Post-meeting work, which involved literature reviews and comparisons of definitions of major constructs identified during the meeting discussions, led to the consensus recommendation of including participation as a long-term outcome in MS falls-prevention interventions. Participation reflects involvement in a life situation. This article explains the rationale for this recommendation and presents four measures that have the potential for use in tracking long-term participation outcomes in MS falls-prevention research.