Incertidumbre ante la enfermedad de cuidadores familiares de pacientes en cuidados paliativos: scoping review

• Published in: Aquichan 2020, Vol.20 (3)
• Main Authors: Rojas Reyes, Jennifer, Arias Rojas, Edier Mauricio, Carreño Moreno, Sonia Patricia
• Format: Article
• Language: Spanish
• Subjects: Caregivers; cuidadores; cuidados paliativos; cuidados paliativos al final de la vida; cuidados paliativos na terminalidade da vida; enfermagem; enfermería; Incerteza; Incertidumbre; Nursing; Palliative Care; Palliative Care at the end of life; Uncertainty
• ISSN: 1657-5997; 2027-5374

Incertidumbre ante la enfermedad de cuidadores familiares de pacientes en cuidados paliativos: scoping reviewIncerteza dos familiares e cuidadores perante a doença de pacientes em cuidados paliativos: scoping reviewObjective: To know the development of the scientific evidence on the uncertainty towards the disease of family caregivers of patients in palliative care.Materials and methods: A descriptive scoping review. A search was conducted in the Embase, ScienceDirect, Medline, Academic Search Complete, Scopus databases, during the 2000-2019 period. The following MeSH terms were used: uncertainty, palliative care, end of life, nursing and caregiver. Fifty articles were selected after the criticism process.Results: Five thematic nuclei emerged: characterization of uncertainty in the caregiver, factors influencing uncertainty, resources to manage uncertainty, uncertainty assessment, and therapies and interventions to approach uncertainty. The higher scale of evidence is found in the characterization of uncertainty in the caregiver, and the voids direct the development of Nursing interventions on the uncertainty of the caregivers of individuals in palliative care.Conclusions: Although the factors influencing uncertainty towards the disease of the caregiver are widely explored, the evidence on the interventions that may help to reduce uncertainty towards the disease is still limited.Para citar este artículo / To reference this article / Para citar este artigoArias-Rojas M, Carreño-Moreno S, Rojas-Reyes J. Uncertainty towards the disease of family caregivers of patients in palliative care: A scoping review. Aquichan. 2020;20(3):e2034. DOI: https://doi.org/10.5294/aqui.2020.20.3.4Recibido: 17/12/2019Aceptado: 27/04/2020Publicado: 07/09/2020 Incertidumbre ante la enfermedad de cuidadores familiares de pacientes en cuidados paliativos: scoping reviewIncerteza dos familiares e cuidadores perante a doença de pacientes em cuidados paliativos: scoping reviewObjetivo: conhecer o desenvolvimento de evidências científicas sobre a incerteza de cuidadores familiares em relação à doença de pacientes em cuidados paliativos.Materiais e métodos: revisão descritiva tipo scoping review. Foi realizada pesquisa nas bases de dados Embase, ScienceDirect, Medline, Academic Search Complete e Scopus, no período 2000-2019. Foram utilizados os termos MeSH uncertainty, palliative care, end of life, nursing e caregiver. Após análise crítica, foram selecionados cinquenta artigos.Resultados: