Barriers to recruiting and retaining psychosis carers: a case study on the lessons learned from the Caring for Caregivers (C4C) trial

Carers play an important role within the UK mental health system. Those carers who support persons with psychosis can experience a reduction in their own physical and mental health. As part of the Caring for Caregivers (C4C) trial, we piloted a writing intervention (Positive Written Disclosure) that...

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Bibliographic Details
Published in:BMC research notes 2019-12, Vol.12 (1), p.810-810, Article 810
Main Authors: Hazell, Cassie M, Jones, Christina J, Pandey, Aparajita, Smith, Helen E
Format: Article
Language:English
Subjects:
Barriers
Caregivers
Carer
Case studies
Consent
Data processing
Disclosure of information
Feasibility studies
Health services
Mental health
Mental health care
Psychosis
Psychotic disorders
Recruiting
Recruitment
Research Note
Researchers
Retention
Social media
Trial
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Summary:Carers play an important role within the UK mental health system. Those carers who support persons with psychosis can experience a reduction in their own physical and mental health. As part of the Caring for Caregivers (C4C) trial, we piloted a writing intervention (Positive Written Disclosure) that has been shown to improve wellbeing in other populations. Although we reached our recruitment target, we encountered several barriers that made recruitment slower than anticipated. This paper synthesises the process data collected during the C4C trial that relates to the barriers to recruiting and retaining psychosis carers. We encountered four main carer-specific barriers to the recruitment and retention of participants in our study. These were: (1) poor relationship with mental health clinicians, (2) conflicting with the care recipient's (CR) needs, (3) lack of spare time, and (4) lack of services for mental health carers. The interventions to assist carers need to be informed by robust evidence and this requires trials that reach their recruitment targets. By sharing our practical experiences other researchers and clinicians can modify their practices to minimise recruitment difficulties and delay. Trial registration ISRCTN79116352. Retrospectively registered (before the final participant was recruited) on 23rd January 2017.
ISSN:1756-0500
1756-0500
DOI:10.1186/s13104-019-4832-9