Unmet Needs and Care Delivery Gaps Among Rural Cancer Survivors

• Published in: Journal of patient experience 2024-01, Vol.11, p.23743735241239865-23743735241239865
• Main Authors: Stout, Nicole L, Boatman, Dannell, Rice, Madeline, Branham, Emelia, Miller, Meadow, Salyer, Rachel
• Format: Article
• Language: English
• Subjects: Cancer; Medical diagnosis; Polls & surveys; Rural areas
• ISSN: 2374-3735; 2374-3743
• DOI: 10.1177/23743735241239865

Community-based healthcare delivery systems frequently lack cancer-specific survivorship support services. This leads to a burden of unmet needs that is magnified in rural areas. Using sequential mixed methods we assessed unmet needs among rural cancer survivors diagnosed between 2015 and 2021. The Supportive Care Needs Survey (SCNS) assessed 5 domains; Physical and Daily Living, Psychological, Support and Supportive Services, Sexual, and Health Information. Needs were analyzed across domains by cancer type. Survey respondents were recruited for qualitative interviews to identify care gaps. Three hundred and sixty two surveys were analyzed. Participants were 85% White (n = 349) 65% (n = 234) female and averaged 2.03 years beyond cancer diagnosis. Nearly half (49.5%) of respondents reported unmet needs, predominantly in physical, psychological, and health information domains. Needs differed by stage of disease. Eleven interviews identified care gap themes regarding; Finding Support and Supportive Services and Health Information regarding Care Delivery and Continuity of Care. Patients experience persistent unmet needs after a cancer diagnosis across multiple functional domains. Access to community-based support services and health information is lacking. Community based resources are needed to improve access to care for long-term cancer survivors.