The dyadic self-care experience of stroke survivors and their caregivers: A qualitative descriptive study

• Published in: Health expectations : an international journal of public participation in health care and health policy 2023-12, Vol.26 (6), p.2325-2339
• Main Authors: Wang, Wenna, Pucciarelli, Gianluca, Mei, Yongxia, Zhang, Zhenxiang, Vellone, Ercole
• Format: Article
• Language: English
• Subjects: Activities of daily living; caregiver; Caregivers; Chronic illnesses; Clinical medicine; Consent; Cooperation; Coping strategies; Data analysis; Data collection; dyadic; experience; family‐centred care; Global health; Health promotion; Interpersonal relations; Interviews; Medical personnel; Original; Patients; Public health; Qualitative research; qualitative study; Quality; Self care; Stroke; Survival; Survivor
• ISSN: 1369-6513; 1369-7625
• DOI: 10.1111/hex.13838

Promoting self-care is the core response strategy of the global health system to the burden of stroke. Although self-care in stroke represents a dyadic phenomenon, the dyadic self-care experience of stroke survivors and their caregivers is often overlooked in clinical practice. The aim of this study was to explore the dyadic self-care experience of stroke survivors and their caregivers. A descriptive qualitative design was used to conduct the study. The Consolidated Criteria for Reporting Qualitative Research was used for study reporting. A total of 21 stroke survivor-caregiver dyads were recruited for this study between May 2022 and September 2022. Data were collected through semistructured interviews and analyzed using thematic analysis. In this study, four themes were identified: (1) poor relationship quality of the dyads, (2) dyadic incongruence in managing stroke, (3) a slow and tiring dyadic self-care process and (4) happy cooperation in coping with dyadic self-care. Healthcare professionals should give greater consideration to the contradictions and disparities that may arise between stroke survivors and caregivers during the self-care process. It is crucial for them to provide personalized and tailored support and interventions that can assist these individuals in achieving a more optimal balance in their dyadic self-care. Patients were involved in the formulation of interview questions for this study. No members of the public were involved in this study.