Benefits, for patients with late stage chronic obstructive pulmonary disease, of being cared for in specialized palliative care compared to hospital. A nationwide register study

In early stage chronic obstructive pulmonary disease (COPD), dyspnea has been reported as the main symptom; but at the end of life, patients dying from COPD have a heavy symptom burden. Still, specialist palliative care is seldom offered to patients with COPD; they more often receive end of life car...

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Bibliographic Details
Published in:BMC palliative care 2021-08, Vol.20 (1), p.130-13, Article 130
Main Authors: Henoch, Ingela, Ekberg-Jansson, Ann, Löfdahl, Claes-Göran, Strang, Peter
Format: Article
Language:English
Subjects:
Care and treatment
Chronic obstructive pulmonary disease
Comparative analysis
copd
Data collection
Death & dying
Diagnosis
Disease
Dyspnea
embolism
End of life care
Exercise
Health Care Sciences & Services
Health Sciences
Hospital
Hospitals
Humans
Hälsovetenskap
Length of stay
Lung cancer
Lung diseases, Obstructive
Lungmedicin och allergi
Medical and Health Sciences
Medicin och hälsovetenskap
Methods
needs
Nursing
of-life care
Omvårdnad
Palliative Care
Palliative treatment
Patient outcomes
Patients
Physical fitness
Pulmonary Disease, Chronic Obstructive - therapy
Questionnaires
Register study
Registries
Respiratory Medicine and Allergy
Specialized palliative care
Symptom management
Terminal Care
time
Variables
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Summary:In early stage chronic obstructive pulmonary disease (COPD), dyspnea has been reported as the main symptom; but at the end of life, patients dying from COPD have a heavy symptom burden. Still, specialist palliative care is seldom offered to patients with COPD; they more often receive end of life care in hospitals. Furthermore, symptoms, symptom relief and care activities in the last week of life for COPD patients are rarely studied. The aim of this study was to compare patient and care characteristics in late stage COPD patients treated in specialized palliative care (SPC) versus hospital. Two nationwide registers were merged, the Swedish National Airway Register (SNAR) and the Swedish Register of Palliative Care (SRPC). Patients with COPD and 
ISSN:1472-684X
1472-684X
DOI:10.1186/s12904-021-00826-y