Types and delivery of emotional support to promote linkage and engagement in HIV care

• Published in: Patient preference and adherence 2018-01, Vol.12, p.45-52
• Main Authors: Cook, Christa L, Canidate, Shantrel, Ennis, Nicole, Cook, Robert L
• Format: Article
• Language: English
• Subjects: Analysis; engagement in care; Health education; HIV; HIV patients; linkage to care; Original Research; Patient education; qualitative; Reason; Sexually transmitted disease prevention; Social aspects; Social support
• ISSN: 1177-889X; 1177-889X
• DOI: 10.2147/PPA.S145698

Despite recommendations for early entry into human immunodeficiency virus (HIV) care, many people diagnosed with HIV delay seeking care. Multiple types of social support (ie, cognitive, emotional, and tangible) are often needed for someone to transition into HIV care, but a lack of emotional support at diagnosis may be the reason why some people fail to stay engaged in care. Thus, the purpose of this study was to identify how people living with HIV conceptualized emotional support needs and delivery at diagnosis. We conducted a secondary analysis of qualitative data from 27 people living with HIV, many of whom delayed entry into HIV care. Participants described their experiences seeking care after an HIV diagnosis and identified components of emotional support that aided entry into care - identification, connection, and navigational presence. Many participants stated that these types of support were ideally delivered by peers with HIV. In clinical practice, providers often use an HIV diagnosis as an opportunity to educate patients about HIV prevention and access to services. However, this type of social support may not facilitate engagement in care if emotional support needs are not met.