Parent-Researcher Perspectives on Role Intersectionality Related to Autism Research

Although parents of children with autism who are also experts in a related profession have been instrumental in shaping current practices, there is little known about parent-researchers and the benefits and obstacles to including individuals with these intersectional identities on autism focused res...

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Bibliographic Details
Published in:Frontiers in rehabilitation sciences 2022-03, Vol.3, p.718398-718398
Main Authors: Hall, Laura J., Hoxie, Natalie A., Grundon, Gretchen S., Cordero, Yulian N.
Format: Article
Language:English
Subjects:
autism
autoethnography
co-researcher
parent participation
parent-professional
parent-researcher
Rehabilitation Sciences
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Summary:Although parents of children with autism who are also experts in a related profession have been instrumental in shaping current practices, there is little known about parent-researchers and the benefits and obstacles to including individuals with these intersectional identities on autism focused research teams. The following study used collaborative autoethnographies from three parent-researchers hired for a large scale, federally funded project. The parent-researchers, and co-authors, collaborated on all phases of the reported study. Common themes generated from the shared perspectives included: prioritizing children and professional sacrifices; professional training as an asset for parents; potential bias toward parents in professional contexts; assets as parent-professionals; and obstacles for maintaining intersectional roles of parent-professionals. Recommendations for autism researchers and considerations for employing and supporting parent-researchers are discussed.
ISSN:2673-6861
2673-6861
DOI:10.3389/fresc.2022.718398