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Access to primary healthcare services among adults with disabilities in Brazil
To investigate perspectives of people with disabilities in Brazil regarding the access to primary healthcare. In-depth interviews were conducted with 44 individuals with disabilities in Pernambuco, Distrito Federal, and São Paulo between March 2020 and November 2021. These interviews were transcribe...
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| Published in: | Revista de saúde pública 2024-01, Vol.58 (1), p.45 |
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| container_title | Revista de saúde pública |
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| creator | Reichenberger, Veronika Carvalho, Maria Eduarda Lima de Shakespeare, Tom Hameed, Shaffa Lyra, Tereza Maciel Albuquerque, Maria do Socorro Velo de Penn-Kekana, Loveday Brito, Christina May Moran de Köptcke, Luciana Sepúlveda Kuper, Hannah |
| description | To investigate perspectives of people with disabilities in Brazil regarding the access to primary healthcare.
In-depth interviews were conducted with 44 individuals with disabilities in Pernambuco, Distrito Federal, and São Paulo between March 2020 and November 2021. These interviews were transcribed, coded, and analysed thematically, using the Levesque framework to identify healthcare access barriers.
Participants expressed a solid understanding of their healthcare needs and existing obstacles. However, individuals with hearing and visual impairments experience challenges because of communication barriers. In Pernambuco, the Community Health Agent was often the initial point of contact for primary care services. Public transportation lacked accessibility, from buses to driver attitudes, posing difficulties for people with disabilities. More accessible transportation and improved urban infrastructure could enhance service access. High medication costs were reported due to limited healthcare unit availability. Communication accessibility issues, inadequate audio-visual resources and equipment were also identified as barriers. Attitudinal barriers among healthcare professionals and subpar home visit services further hinder access.
To address these challenges and improve the well-being of individuals with disabilities in Brazil, comprehensive action is essential. This includes leadership, governance, and resource allocation reforms to meet healthcare needs. Initiatives like disability-focused training for service providers, enhanced transportation options, improved information accessibility, and increased support from community healthcare workers can collectively enhance the lives of people with disabilities. |
| doi_str_mv | 10.11606/s1518-8787.2024058005842 |
| format | article |
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In-depth interviews were conducted with 44 individuals with disabilities in Pernambuco, Distrito Federal, and São Paulo between March 2020 and November 2021. These interviews were transcribed, coded, and analysed thematically, using the Levesque framework to identify healthcare access barriers.
Participants expressed a solid understanding of their healthcare needs and existing obstacles. However, individuals with hearing and visual impairments experience challenges because of communication barriers. In Pernambuco, the Community Health Agent was often the initial point of contact for primary care services. Public transportation lacked accessibility, from buses to driver attitudes, posing difficulties for people with disabilities. More accessible transportation and improved urban infrastructure could enhance service access. High medication costs were reported due to limited healthcare unit availability. Communication accessibility issues, inadequate audio-visual resources and equipment were also identified as barriers. Attitudinal barriers among healthcare professionals and subpar home visit services further hinder access.
To address these challenges and improve the well-being of individuals with disabilities in Brazil, comprehensive action is essential. This includes leadership, governance, and resource allocation reforms to meet healthcare needs. Initiatives like disability-focused training for service providers, enhanced transportation options, improved information accessibility, and increased support from community healthcare workers can collectively enhance the lives of people with disabilities.</description><identifier>ISSN: 0034-8910</identifier><identifier>ISSN: 1518-8787</identifier><identifier>EISSN: 1518-8787</identifier><identifier>DOI: 10.11606/s1518-8787.2024058005842</identifier><identifier>PMID: 39442120</identifier><language>eng</language><publisher>Brazil: Faculdade de Saúde Pública da Universidade de São Paulo</publisher><subject>Adult ; Barriers to Access of Health Services ; Brazil ; Communication Barriers ; Disabled Persons ; Female ; Health Information Systems ; Health Policy & Services ; Health Services Accessibility ; Health Services for Persons with Disabilities ; Humans ; Interviews as Topic ; Male ; Middle Aged ; Primary Health Care ; Qualitative Research ; Transportation ; Young Adult</subject><ispartof>Revista de saúde pública, 2024-01, Vol.58 (1), p.45</ispartof><rights>This work is licensed under a Creative Commons Attribution 4.0 International License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><orcidid>0000-0002-8952-0023 ; 0000-0003-2571-2787 ; 0000-0001-7079-6575 ; 0000-0002-3600-7250 ; 0000-0003-3775-6533 ; 0000-0002-1520-700X ; 0000-0002-7610-1348 ; 0000-0002-9758-4529 ; 0000-0001-6778-2682 ; 0000-0003-2723-1709</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>230,314,780,784,885,24150,27924,27925</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/39442120$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Reichenberger, Veronika</creatorcontrib><creatorcontrib>Carvalho, Maria Eduarda Lima de</creatorcontrib><creatorcontrib>Shakespeare, Tom</creatorcontrib><creatorcontrib>Hameed, Shaffa</creatorcontrib><creatorcontrib>Lyra, Tereza Maciel</creatorcontrib><creatorcontrib>Albuquerque, Maria do Socorro Velo de</creatorcontrib><creatorcontrib>Penn-Kekana, Loveday</creatorcontrib><creatorcontrib>Brito, Christina May Moran de</creatorcontrib><creatorcontrib>Köptcke, Luciana Sepúlveda</creatorcontrib><creatorcontrib>Kuper, Hannah</creatorcontrib><title>Access to primary healthcare services among adults with disabilities in Brazil</title><title>Revista de saúde pública</title><addtitle>Rev Saude Publica</addtitle><description>To investigate perspectives of people with disabilities in Brazil regarding the access to primary healthcare.
In-depth interviews were conducted with 44 individuals with disabilities in Pernambuco, Distrito Federal, and São Paulo between March 2020 and November 2021. These interviews were transcribed, coded, and analysed thematically, using the Levesque framework to identify healthcare access barriers.
Participants expressed a solid understanding of their healthcare needs and existing obstacles. However, individuals with hearing and visual impairments experience challenges because of communication barriers. In Pernambuco, the Community Health Agent was often the initial point of contact for primary care services. Public transportation lacked accessibility, from buses to driver attitudes, posing difficulties for people with disabilities. More accessible transportation and improved urban infrastructure could enhance service access. High medication costs were reported due to limited healthcare unit availability. Communication accessibility issues, inadequate audio-visual resources and equipment were also identified as barriers. Attitudinal barriers among healthcare professionals and subpar home visit services further hinder access.
To address these challenges and improve the well-being of individuals with disabilities in Brazil, comprehensive action is essential. This includes leadership, governance, and resource allocation reforms to meet healthcare needs. Initiatives like disability-focused training for service providers, enhanced transportation options, improved information accessibility, and increased support from community healthcare workers can collectively enhance the lives of people with disabilities.</description><subject>Adult</subject><subject>Barriers to Access of Health Services</subject><subject>Brazil</subject><subject>Communication Barriers</subject><subject>Disabled Persons</subject><subject>Female</subject><subject>Health Information Systems</subject><subject>Health Policy & Services</subject><subject>Health Services Accessibility</subject><subject>Health Services for Persons with Disabilities</subject><subject>Humans</subject><subject>Interviews as Topic</subject><subject>Male</subject><subject>Middle Aged</subject><subject>Primary Health Care</subject><subject>Qualitative Research</subject><subject>Transportation</subject><subject>Young Adult</subject><issn>0034-8910</issn><issn>1518-8787</issn><issn>1518-8787</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2024</creationdate><recordtype>article</recordtype><sourceid>DOA</sourceid><recordid>eNpVUctuFDEQtBARWQK_gMyNyyx-zdhzDBEJkaLkEDhbPXZP1ivvOtgzQfD1eB-sxMG25OqqLlUR8pGzJecd6z4X3nLTGG30UjChWGtYPUq8IosT8posGJOqMT1n5-RtKWvGhBTSvCHnsldKcMEW5P7SOSyFTok-57CB_JuuEOK0cpCRFswvoeIUNmn7RMHPcSr0V5hW1IcCQ4hhChUOW_olw58Q35GzEWLB98f3gvy4_vr96ltz93Bze3V51zip9NSAkk517YBSSw1aeEAwYJg3XI9GIvQGXT8aLWEwrUAvx2rZiHEA6IX28oLcHnR9grU9OrcJgt1_pPxkIU_BRbTCK1SSc9PpVplWAje-rcvq1Xvdqaq1PGgVFzAmu05z3lbz9nGXn93ltw-ZMV4TVLwSPh0Izzn9nLFMdhOKwxhhi2kuVtZkWdvpfjfaH0ZdTqVkHE9eObP7Lu2-S7trzP7XZeV-OK6Zhw36E_NfefIvT6yW6Q</recordid><startdate>20240101</startdate><enddate>20240101</enddate><creator>Reichenberger, Veronika</creator><creator>Carvalho, Maria Eduarda Lima de</creator><creator>Shakespeare, Tom</creator><creator>Hameed, Shaffa</creator><creator>Lyra, Tereza Maciel</creator><creator>Albuquerque, Maria do Socorro Velo de</creator><creator>Penn-Kekana, Loveday</creator><creator>Brito, Christina May Moran de</creator><creator>Köptcke, Luciana Sepúlveda</creator><creator>Kuper, Hannah</creator><general>Faculdade de Saúde Pública da Universidade de São Paulo</general><general>Universidade de São Paulo</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>GPN</scope><scope>DOA</scope><orcidid>https://orcid.org/0000-0002-8952-0023</orcidid><orcidid>https://orcid.org/0000-0003-2571-2787</orcidid><orcidid>https://orcid.org/0000-0001-7079-6575</orcidid><orcidid>https://orcid.org/0000-0002-3600-7250</orcidid><orcidid>https://orcid.org/0000-0003-3775-6533</orcidid><orcidid>https://orcid.org/0000-0002-1520-700X</orcidid><orcidid>https://orcid.org/0000-0002-7610-1348</orcidid><orcidid>https://orcid.org/0000-0002-9758-4529</orcidid><orcidid>https://orcid.org/0000-0001-6778-2682</orcidid><orcidid>https://orcid.org/0000-0003-2723-1709</orcidid></search><sort><creationdate>20240101</creationdate><title>Access to primary healthcare services among adults with disabilities in Brazil</title><author>Reichenberger, Veronika ; Carvalho, Maria Eduarda Lima de ; Shakespeare, Tom ; Hameed, Shaffa ; Lyra, Tereza Maciel ; Albuquerque, Maria do Socorro Velo de ; Penn-Kekana, Loveday ; Brito, Christina May Moran de ; Köptcke, Luciana Sepúlveda ; Kuper, Hannah</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c347t-a43c465be3737a72daea8a80d817f83ea98ec9f873ab852ed3f39482fbaa927d3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2024</creationdate><topic>Adult</topic><topic>Barriers to Access of Health Services</topic><topic>Brazil</topic><topic>Communication Barriers</topic><topic>Disabled Persons</topic><topic>Female</topic><topic>Health Information Systems</topic><topic>Health Policy & Services</topic><topic>Health Services Accessibility</topic><topic>Health Services for Persons with Disabilities</topic><topic>Humans</topic><topic>Interviews as Topic</topic><topic>Male</topic><topic>Middle Aged</topic><topic>Primary Health Care</topic><topic>Qualitative Research</topic><topic>Transportation</topic><topic>Young Adult</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Reichenberger, Veronika</creatorcontrib><creatorcontrib>Carvalho, Maria Eduarda Lima de</creatorcontrib><creatorcontrib>Shakespeare, Tom</creatorcontrib><creatorcontrib>Hameed, Shaffa</creatorcontrib><creatorcontrib>Lyra, Tereza Maciel</creatorcontrib><creatorcontrib>Albuquerque, Maria do Socorro Velo de</creatorcontrib><creatorcontrib>Penn-Kekana, Loveday</creatorcontrib><creatorcontrib>Brito, Christina May Moran de</creatorcontrib><creatorcontrib>Köptcke, Luciana Sepúlveda</creatorcontrib><creatorcontrib>Kuper, Hannah</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>SciELO</collection><collection>Directory of Open Access Journals</collection><jtitle>Revista de saúde pública</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Reichenberger, Veronika</au><au>Carvalho, Maria Eduarda Lima de</au><au>Shakespeare, Tom</au><au>Hameed, Shaffa</au><au>Lyra, Tereza Maciel</au><au>Albuquerque, Maria do Socorro Velo de</au><au>Penn-Kekana, Loveday</au><au>Brito, Christina May Moran de</au><au>Köptcke, Luciana Sepúlveda</au><au>Kuper, Hannah</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Access to primary healthcare services among adults with disabilities in Brazil</atitle><jtitle>Revista de saúde pública</jtitle><addtitle>Rev Saude Publica</addtitle><date>2024-01-01</date><risdate>2024</risdate><volume>58</volume><issue>1</issue><spage>45</spage><pages>45-</pages><issn>0034-8910</issn><issn>1518-8787</issn><eissn>1518-8787</eissn><abstract>To investigate perspectives of people with disabilities in Brazil regarding the access to primary healthcare.
In-depth interviews were conducted with 44 individuals with disabilities in Pernambuco, Distrito Federal, and São Paulo between March 2020 and November 2021. These interviews were transcribed, coded, and analysed thematically, using the Levesque framework to identify healthcare access barriers.
Participants expressed a solid understanding of their healthcare needs and existing obstacles. However, individuals with hearing and visual impairments experience challenges because of communication barriers. In Pernambuco, the Community Health Agent was often the initial point of contact for primary care services. Public transportation lacked accessibility, from buses to driver attitudes, posing difficulties for people with disabilities. More accessible transportation and improved urban infrastructure could enhance service access. High medication costs were reported due to limited healthcare unit availability. Communication accessibility issues, inadequate audio-visual resources and equipment were also identified as barriers. Attitudinal barriers among healthcare professionals and subpar home visit services further hinder access.
To address these challenges and improve the well-being of individuals with disabilities in Brazil, comprehensive action is essential. This includes leadership, governance, and resource allocation reforms to meet healthcare needs. Initiatives like disability-focused training for service providers, enhanced transportation options, improved information accessibility, and increased support from community healthcare workers can collectively enhance the lives of people with disabilities.</abstract><cop>Brazil</cop><pub>Faculdade de Saúde Pública da Universidade de São Paulo</pub><pmid>39442120</pmid><doi>10.11606/s1518-8787.2024058005842</doi><orcidid>https://orcid.org/0000-0002-8952-0023</orcidid><orcidid>https://orcid.org/0000-0003-2571-2787</orcidid><orcidid>https://orcid.org/0000-0001-7079-6575</orcidid><orcidid>https://orcid.org/0000-0002-3600-7250</orcidid><orcidid>https://orcid.org/0000-0003-3775-6533</orcidid><orcidid>https://orcid.org/0000-0002-1520-700X</orcidid><orcidid>https://orcid.org/0000-0002-7610-1348</orcidid><orcidid>https://orcid.org/0000-0002-9758-4529</orcidid><orcidid>https://orcid.org/0000-0001-6778-2682</orcidid><orcidid>https://orcid.org/0000-0003-2723-1709</orcidid><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0034-8910 |
| ispartof | Revista de saúde pública, 2024-01, Vol.58 (1), p.45 |
| issn | 0034-8910 1518-8787 1518-8787 |
| language | eng |
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| source | SciELO Brazil; PubMed Central Free |
| subjects | Adult Barriers to Access of Health Services Brazil Communication Barriers Disabled Persons Female Health Information Systems Health Policy & Services Health Services Accessibility Health Services for Persons with Disabilities Humans Interviews as Topic Male Middle Aged Primary Health Care Qualitative Research Transportation Young Adult |
| title | Access to primary healthcare services among adults with disabilities in Brazil |
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