Patient advocacy and arthritis: moving forward

Patient advocacy is based on the premise that people have the right to make their own choices about their health care. Personal advocacy is centred on the experiential expertise of the individual affected by the condition, whereas group advocacy is grounded on patient-centred strategies and actions....

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Bibliographic Details
Published in:Bulletin of the World Health Organization 2004-02, Vol.82 (2), p.115-120
Main Authors: LEONG, Amye L, EULLER-ZIEGLER, Liana
Format: Article
Language:English
Subjects:
Advocacy
Arthritis
Arthritis - therapy
Arthritis/prevention and control
Australia
Biological and medical sciences
Care and treatment
Cooperation
Crossnational studies
Diseases of the osteoarticular system
Education, Medical
Empowerment
Europe
Health care policy
Health Policy & Services
Humans
International cooperation
Internet
Intersectoral cooperation
Medical sciences
Medical service
Miscellaneous. Osteoarticular involvement in other diseases
New Zealand
North America
Participation
Patient advocacy
Patient Advocacy - trends
Patient education
Patient Education as Topic
Patient Participation
Patient rights
Patient-Centered Care - trends
Patients
Personal Autonomy
Philosophy
Physician and patient
Physician-patient relations
Professional relationships
Program Development
Public health
Self Care
Self-help groups
South Africa
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Summary:Patient advocacy is based on the premise that people have the right to make their own choices about their health care. Personal advocacy is centred on the experiential expertise of the individual affected by the condition, whereas group advocacy is grounded on patient-centred strategies and actions. The first patient advocacy groups for arthritis were set up over 20 years ago in the USA and have subsequently spread to many other countries. This paper discusses the growth and impact of personal advocacy as well as recent developments in group advocacy in the Asia-Pacific region, Europe, and North America, in terms of arthritis awareness, research, corporate partnerships, and the Bone and Joint Decade global initiative.
ISSN:0042-9686
1564-0604
DOI:10.1590/S0042-96862004000200008