Participation of fathers and siblings in home rehabilitation programmes for children with neuro-developmental delay: a scoping review

The role of, and impact on, mothers caring for children with neuro-developmental delay (NDD) is well documented. However, the role of fathers and siblings in families of children with NDD remains significantly understudied, particularly in low- and middle-income countries (LMICs). There has been an...

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Bibliographic Details
Published in:BMC pediatrics 2024-10, Vol.24 (1), p.659-12, Article 659
Main Authors: Madzimbe, Precious, Maart, Soraya, Corten, Lieselotte, Dambi, Jermaine
Format: Article
Language:English
Subjects:
Care and treatment
Caregivers - psychology
Child
Developmental delay
Developmental Disabilities - rehabilitation
Family
Fathers
Fathers - psychology
Health aspects
Home Care Services
Home-based programmes
Humans
Methods
Neuro-developmental delay
Participation
Pediatric research
Rehabilitation
Siblings
Siblings - psychology
Social aspects
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Summary:The role of, and impact on, mothers caring for children with neuro-developmental delay (NDD) is well documented. However, the role of fathers and siblings in families of children with NDD remains significantly understudied, particularly in low- and middle-income countries (LMICs). There has been an increased call for holistic rehabilitation of children with NDD at the family level. This study aimed to explore the involvement of fathers and siblings in the home rehabilitation programmes of children with NDD. A scoping review was conducted using the Joanna Briggs Institute (JBI) Peters et al.'s methodology and reported according to Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) guidelines. Articles were retrieved from PUBMED, ScienceDirect, PsycINFO, SCOPUS, PEDro, and Google Scholar. Reference lists of relevant studies were also manually searched. Thirty research articles were identified. Father and sibling participation in home-based rehabilitation and caregiving is low in LMICs compared to high-income countries due to economic factors and cultural beliefs. Reduced participation stresses mothers and reduces developmental outcomes in children with NDD. This review highlights the need for rehabilitation professionals to encourage father and sibling participation in caregiving for children with NDD in home rehabilitation programmes.
ISSN:1471-2431
1471-2431
DOI:10.1186/s12887-024-05119-w