Health data justice: building new norms for health data governance

The retention and use of health-related data by government, corporate, and health professional actors risk exacerbating the harms of colonial systems of inequality in which health care and public health are situated, regardless of the intentions about how those data are used. In this context, a data...

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Bibliographic Details
Published in:NPJ digital medicine 2023-02, Vol.6 (1), p.30-30, Article 30
Main Authors: Shaw, James, Sekalala, Sharifah
Format: Article
Language:English
Subjects:
692/700/1538
692/700/3935
Biomedicine
Biotechnology
Clinical governance
Data collection
Digital technology
Health disparities
Medicine
Medicine & Public Health
Perspective
Social justice
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Summary:The retention and use of health-related data by government, corporate, and health professional actors risk exacerbating the harms of colonial systems of inequality in which health care and public health are situated, regardless of the intentions about how those data are used. In this context, a data justice perspective presents opportunities to develop new norms of health-related data governance that hold health justice as the primary objective. In this perspective, we define the concept of health data justice, outline urgent issues informed by this approach, and propose five calls to action from a health data justice perspective.
ISSN:2398-6352
2398-6352
DOI:10.1038/s41746-023-00780-4