Engaging people with lived experience of dementia in research meetings and events: insights from multiple perspectives

This perspective article describes the experiences of engaging people with lived experience of dementia in research meetings and events from the perspectives of people with lived experience, researchers, trainees, audience members and others. We outline examples of engagement from different events a...

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Bibliographic Details
Published in:Frontiers in dementia 2024-07, Vol.3, p.1421737
Main Authors: Snowball, Ellen, Aiken, Christine, Norman, Myrna, Hykaway, Wayne, Dempster, Zoe, Itzhak, Inbal, McLellan, Emily, McGilton, Katherine S, Bethell, Jennifer
Format: Article
Language:English
Subjects:
aging
Dementia
engagement in research
health research
lived experience of dementia
patient and public engagement
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Summary:This perspective article describes the experiences of engaging people with lived experience of dementia in research meetings and events from the perspectives of people with lived experience, researchers, trainees, audience members and others. We outline examples of engagement from different events and describe a video project, initiated by people with lived experience, conveying diverse views about becoming integral collaborators in the Canadian Consortium on Neurodegeneration in Aging (CCNA) annual Partners Forum and Science Days. We also report evaluation data from audiences and present a series of tips and strategies for facilitating this engagement, including practical considerations for supporting people with lived experience.
ISSN:2813-3919
2813-3919
DOI:10.3389/frdem.2024.1421737