Shaping the future of kidney genetics in Australia: proceedings from the KidGen policy implementation workshop 2023

The KidGen Collaborative's Policy Implementation Workshop 2023 celebrated the 10th anniversary of Australia's first kidney genetics clinic in Brisbane. This event marked the establishment of a national network now comprising 19 kidney genetics clinics across Australia, all dedicated to pro...

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Bibliographic Details
Published in:Human genomics 2024-08, Vol.18 (1), p.88-10
Main Authors: Mallawaarachchi, Amali, Biros, Erik, Harris, Trudie, Bennetts, Bruce, Boughtwood, Tiffany, Elliott, Justine, Fowles, Lindsay, Gardos, Robert, Garza, Denisse, Goranitis, Ilias, Haas, Matilda, Huntley, Vanessa, Jefferis, Julia, Kassahn, Karin, Leaver, Anna, Lundie, Ben, Lunke, Sebastian, O'Connor, Caitlin, Pratt, Greg, Quinlan, Catherine, Shearman, Dianne, Soraru, Jacqueline, Sundaram, Madhivanan, Tchan, Michel, Valente, Giulia, White, Julie, Wilkins, Ella, Alexander, Steve I, Amir, Noa, Best, Stephanie, Gul, Hossai, Jayasinghe, Kushani, McCarthy, Hugh, Patel, Chirag, Stark, Zornitza, Mallett, Andrew J
Format: Article
Language:English
Subjects:
Australia
Clinical trials
Clinics
Collaboration
Creative problem-solving
Funding
Genetic Testing - trends
Genetics
Genomes
Genomic testing
Genomics
Health education
Health literacy
Humans
KidGen
Kidney disease
Kidney diseases
Kidney Diseases - genetics
Laboratories
Medicare
Medicine
Multidisciplinary teams
Nephrology
Patients
Pediatrics
Personalised medicine
Seminars
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Summary:The KidGen Collaborative's Policy Implementation Workshop 2023 celebrated the 10th anniversary of Australia's first kidney genetics clinic in Brisbane. This event marked the establishment of a national network now comprising 19 kidney genetics clinics across Australia, all dedicated to providing equitable access to genomic testing for families affected by genetic kidney diseases. The workshop reflected on past progress and outlined future objectives for kidney genetics in Australia, recognising the collaborative efforts of clinical teams, researchers, and patients. Key insights from the workshop are documented in the proceedings.
ISSN:1473-9542
1479-7364
1479-7364
DOI:10.1186/s40246-024-00656-y