Measuring the health-related quality of life of children with impaired mobility: examining correlation and agreement between children and parent proxies

The objective of this research project was to evaluate the validity of proxy health-related quality of life measures in the context of paediatric mobility impairment. Accurate health-related quality of life data is essential for quality-adjusted life year calculation; a key outcome in economic evalu...

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Bibliographic Details
Published in:BMC research notes 2017-08, Vol.10 (1), p.377-377, Article 377
Main Authors: Bray, Nathan, Noyes, Jane, Harris, Nigel, Edwards, Rhiannon Tudor
Format: Article
Language:English
Subjects:
Adolescent
Adult
Assistive technology
Cerebral palsy
Child
Childhood disability
Children
Children & youth
Children with disabilities
Disabled Children
Families & family life
Female
Guardians
Health economics
Health-related quality of life
Humans
Male
Middle Aged
Mobility
Mobility impairment
Mobility Limitation
Parents
Parents & parenting
Physically disabled children
Physiological aspects
Proxies
Quality of Life
Questionnaires
Research Note
Self Report
Social aspects
Statistical methods
Wheelchair
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Summary:The objective of this research project was to evaluate the validity of proxy health-related quality of life measures in the context of paediatric mobility impairment. Accurate health-related quality of life data is essential for quality-adjusted life year calculation; a key outcome in economic evaluation. Thirteen child-parent dyads (13 children with mobility impairments, 13 parent proxies) were asked to complete a range of outcome measures (EQ-5D-Y, VAS and HUI2/3) relating to the child's health. The relationship between respondent outcomes was examined using tests of respondent type effect (Wilcoxon signed-rank), correlation (Spearman's rank-order) and agreement (Bland-Altman plots). Parent proxies significantly undervalued the health-related quality of life of their mobility-impaired children: children rated their health-related quality of life higher than their parents by proxy on all measures. The VAS had the highest overall mean score for children and proxies (79.50 [SD = 15.01] and 75.77 [SD = 14.70] respectively). Child and proxy results were significantly different (p 
ISSN:1756-0500
1756-0500
DOI:10.1186/s13104-017-2683-9