Young-onset dementia in memory clinics in the Netherlands: Study design and description of PRECODE-GP

The disease trajectory and healthcare requirements of patients with young-onset dementia (YOD) differ from those of older patients. Accurate data about YOD is crucial to improve diagnosis and optimize care. PRECODE-GP aims to set up a prospective national database of patients with YOD to gain insigh...

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Bibliographic Details
Published in:Alzheimer's & dementia : diagnosis, assessment & disease monitoring assessment & disease monitoring, 2023-07, Vol.15 (3), p.e12471-e12471
Main Authors: van Gils, Aniek M, Rhodius-Meester, Hanneke F M, Leeuwis, Anna E, Handgraaf, Dédé, Bakker, Christian, Peetoom, Kirsten, Bouwman, Femke H, Pijnenburg, Yolande A L, Papma, Janne M, Hoogendoorn, Tanja-Anne, Schoonenboom, Niki, van Strien, Astrid, Verwey, Nicolaas A, Köhler, Sebastian, de Vugt, Marjolein E, van der Flier, Wiesje M
Format: Article
Language:English
Subjects:
Age
Alzheimer's disease
Aphasia
care
Clinics
Datasets
Dementia
diagnosis
Epidemiology
Etiology
Hospitals
Informed consent
Medical diagnosis
Memory
Patients
register
young‐onset dementia
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Summary:The disease trajectory and healthcare requirements of patients with young-onset dementia (YOD) differ from those of older patients. Accurate data about YOD is crucial to improve diagnosis and optimize care. PRECODE-GP aims to set up a prospective national database of patients with YOD to gain insight into the occurrence and characteristics of patients with YOD in memory clinics in the Netherlands. The national database includes data from dementia patients aged
ISSN:2352-8729
2352-8729
DOI:10.1002/dad2.12471