At the frontlines of digitisation: a qualitative study on the challenges and opportunities in maintaining accurate, complete and timely digital health records in India’s government health system

• Published in: BMJ open 2022-02, Vol.12 (2), p.e051193-e051193
• Main Authors: Scott, Kerry, Ummer, Osama, Chamberlain, Sara, Sharma, Manjula, Gharai, Dipanwita, Mishra, Bibha, Choudhury, Namrata, Mohan, Diwakar, LeFevre, Amnesty Elizabeth
• Format: Article
• Language: English
• Subjects: Accuracy; Beneficiaries; Cell Phone; Cellular telephones; Childrens health; Data collection; Data entry; Electronic Health Records; Female; Government; Government Programs; health informatics; Health services; health services administration & management; Health Services Research; Humans; India; information management; information technology; Maternal & child health; Mortality; National Health Programs; Postpartum period; Pregnancy; Prenatal care; Public health; Qualitative Research; Telemedicine; Womens health; Workers
• ISSN: 2044-6055; 2044-6055
• DOI: 10.1136/bmjopen-2021-051193

ObjectivesTo understand factors underpinning the accuracy and timeliness of mobile phone numbers and other health information captured in India’s government registry for pregnant and postpartum women. Accurate and timely registration of mobile phone numbers is necessary for beneficiaries to receive mobile health services.SettingMadhya Pradesh and Rajasthan states in India at the community, clinical, and administrative levels of the health system.ParticipantsInterviews (n=59) with frontline health workers (FLHWs), data entry operators, and higher level officials. Focus group discussions (n=12) with pregnant women to discuss experiences with sharing data in the health system. Observations (n=9) of the process of digitization and of interactions between stakeholders for data collection.Primary and secondary outcome measuresThematic analysis identified how key actors experienced the data collection and digitisation process, reasons for late or inaccurate data, and mechanisms that can bolster timeliness and accuracy.ResultsPregnant women were comfortable sharing mobile numbers with health workers, but many were unaware that their data moved beyond their FLHW. FLHWs valued knowing up-to-date beneficiary mobile numbers, but felt little incentive to ensure accuracy in the digital record system. Delays in registering pregnant women in the online portal were attributed to slow movement of paper records into the digital system and difficulties in gathering required documents from beneficiaries. Data, including women’s phone numbers, were handwritten and copied multiple times by beneficiaries and health workers with variable literacy. Supervision tended to focus on completeness rather than accuracy. Health system actors noted challenges with the digital system but valued the broader project of digitisation.ConclusionsIncreased focus on training, supportive supervision, and user-friendly data processes that prioritise accuracy and timeliness should be considered. These inputs can build on existing positive patient–provider relationships and health system actors’ enthusiasm for digitisation.