Quality of life and mental health in emerging adults with cerebral palsy compared to the general population

• Published in: Health and quality of life outcomes 2022-04, Vol.20 (1), p.61-61, Article 61
• Main Authors: Schmidt, Silke, Markwart, Henriette, Rapp, Marion, Guyard, Audrey, Arnaud, Catherine, Fauconnier, Jérôme, Thyen, Ute, Hahm, Stefanie, Vidart d'Egurbide Bagazgoïtia, Nicolas, Muehlan, Holger
• Format: Article
• Language: English
• Subjects: Adolescent; Adult; Adults; Age; Anxiety; Case-Control Studies; Cerebral palsy; Cerebral Palsy - psychology; Child development; Children & youth; Cohort Studies; Cross-Sectional Studies; Demographic aspects; Emerging adults; Health aspects; Humans; Impairment; Life Sciences; Mental depression; Mental Health; Pain; Paralysis; Peers; Population; Psychological aspects; Quality of Life; Self-efficacy; Teenagers; Youth
• ISSN: 1477-7525; 1477-7525
• DOI: 10.1186/s12955-022-01961-7

While evidence concerning Quality of Life (QoL) in youth with cerebral palsy (CP) in comparison to the general population has been accumulating, there is a lack of studies exploring differences on a wider range of positive and negative mental health outcomes in emerging adults. This binational case control study is part of the SPARCLE cohort study on QoL and participation of youth with CP. QoL (WHOQOL-BREF), depression (PHQ-9), anxiety (GAD-7) and self-efficacy (GSE) were assessed in 198 emerging adults with CP and 593 emerging adults from the general population, matched for country of residence, age and gender. ANCOVAs with impairment and pain as covariates were run. Similar levels of QoL were found in both samples, except for the environmental domain, with better QoL for emerging adults with CP compared to the general population. There were significant descriptive differences regarding depression with worse levels in the CP sample, however, also worse levels of self-efficacy. Pain as a covariate had a significant negative impact on all measures, leading to poorer self-efficacy while worsening depression and anxiety; impairment had a significant worsening impact on physical QoL and self-efficacy only. Similar expressions of mental health outcomes in emerging adults with CP and the general population indicate the high adaptive capability of emerging adults with CP.