In search of self after stroke: a longitudinal qualitative study in the context of client-centred rehabilitation

• Published in: International journal of qualitative studies on health and well-being 2023-12, Vol.18 (1), p.2282513-2282513
• Main Authors: Erikson, Anette, Ranner, Maria, Guidetti, Susanne, von Koch, Lena
• Format: Article
• Language: English
• Subjects: Activities in everyday life; Ambiguity; Arbetsterapi; constant comparative method; Empirical Studies; Everyday life; First year; Grounded theory; Humans; Longitudinal Studies; Male; Medicin och hälsovetenskap; occupational identity; occupational therapy; participation; Patient-centered care; Qualitative Research; Rehabilitation; Stroke; Stroke Rehabilitation; Survivor; the lived body
• ISSN: 1748-2631; 1748-2623; 1748-2631
• DOI: 10.1080/17482631.2023.2282513

The aim was to illuminate the experiences of stroke survivors returning to everyday life in the year following stroke, in the context of client-centred rehabilitation. Four men who participated in a client-centred rehabilitation program were followed during the first year after stroke. Semi-structured interviews were conducted, allbut the first in the participants' home. The data were analysed using a grounded theory approach. The results revealed a process with the overarching core category; The "new" self becomes reality through challenging everyday experiences, and five main categories driving the process: 1) Striving for structure in a "new" chaotic world, 2) Homecoming an ambiguous experience, 3) Reaching the "new" self through reflections of self-understanding, 4) Socialising in new circumstances, and 5) Realising a new reality. While in hospital, stroke survivors can have unrealistic expectations. When at home they can begin to realise their actual capacity . To find a "new" self after a stroke can involve time-consuming and taxing processes of reflections of self-understanding. Engagement in self-selected meaningful and valued activities can support stroke survivors' reconstruction of the "new" self but not all stroke survivors may succeed in finding their "new" self during the first year after stroke.