Stigma in adults with sickle cell disease and family members: Scale development and pilot study in the USA and Nigeria

Sickle cell disease associated stigma impacts health-related quality of life and community participation. Stigma in adults living with sickle cell disease and family members was appraised via a pilot study for paired (adult and family) instrument development, face validity, and psychometrics. Likert...

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Bibliographic Details
Published in:International journal of Africa nursing sciences 2018, Vol.9, p.23-29
Main Authors: Leger, Robin R., Wagner, Linda D., Odesina, Victoria
Format: Article
Language:English
Subjects:
Community Based Participatory Research
Ecology of Human Development
Family measures
Instrument development
Sickle cell disease
Social support
Stigma
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Summary:Sickle cell disease associated stigma impacts health-related quality of life and community participation. Stigma in adults living with sickle cell disease and family members was appraised via a pilot study for paired (adult and family) instrument development, face validity, and psychometrics. Likert type stigma scales were adapted from epilepsy and HIV literature with Bronfenbrenner’s Ecology of Human Development Theory as the conceptual framework. 42 adults from United States and Nigeria participated in the study. Chronbach’s alpha of the 40 item Stigma in SCD Scale(s) = 0.86. Total score 0–120; mean = 40.6, SD = 20.9, range = 4–86. Nigerians report higher stigma (r = .60, p 
ISSN:2214-1391
2214-1391
DOI:10.1016/j.ijans.2018.06.003