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Unmet needs related to the quality of life of advanced cancer patients in Korea: a qualitative study

It has recently been emphasized that the unmet needs of cancer patients should be evaluated more holistically, for example, by exploring caregivers' perspectives and cross cultural differences. This study explored additional domains or items of unmet needs among Korean cancer patients in refere...

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Published in:BMC palliative care 2021-04, Vol.20 (1), p.58-58, Article 58
Main Authors: Pyo, Jeehee, Ock, Minsu, Lee, Mina, Kim, Juhee, Cheon, Jaekyung, Cho, Juhee, Kwon, Jung Hye, Kim, Hyeyeoung, Im, Hyeon-Su, Min, Young Joo, Koh, Su-Jin
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creator Pyo, Jeehee
Ock, Minsu
Lee, Mina
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Kim, Hyeyeoung
Im, Hyeon-Su
Min, Young Joo
Koh, Su-Jin
description It has recently been emphasized that the unmet needs of cancer patients should be evaluated more holistically, for example, by exploring caregivers' perspectives and cross cultural differences. This study explored additional domains or items of unmet needs among Korean cancer patients in reference to the Sheffield Profile for Assessment and Referral to Care (SPARC). We conducted four focus group discussions (FGDs) with 15 cancer patients, following a semi-structured format to elicit participants' health perceptions, comments on SPARC, and opinions on the roles of medical professionals to improve the health-related quality of life of cancer patients. We analyzed the verbatim transcripts using a content analysis method. The following themes were derived: living as a cancer patient, striving to overcome cancer, changing attitudes toward life after the cancer diagnosis, and ways to live a better life as a cancer patient. The participants asserted the significance of providing adequate treatment information that is easily understood by cancer patients during the conversation between patients and medical professionals. Besides the physical symptoms identified by SPARC, the participants struggled with numbness in their hands and feet and hair loss. Korean cancer patients prominently wished to avoid burdening their family or others in their daily life. They considered the improvement of health behaviors, such as diet and exercise, as part of the treatment, which was not limited to drugs. Furthermore, it was essential to evaluate the value of cancer patients' lives, as they desired to be helpful members of their families and society. This study identified additional domains and items of unmet needs of Korean cancer patients and broadened the understanding of unmet needs among cancer patients.
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Besides the physical symptoms identified by SPARC, the participants struggled with numbness in their hands and feet and hair loss. Korean cancer patients prominently wished to avoid burdening their family or others in their daily life. They considered the improvement of health behaviors, such as diet and exercise, as part of the treatment, which was not limited to drugs. Furthermore, it was essential to evaluate the value of cancer patients' lives, as they desired to be helpful members of their families and society. 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source Publicly Available Content Database; PubMed Central
subjects Cancer therapies
Chemotherapy
Cultural differences
Focus groups
Health services needs and demand
Health-related quality of life
Medical research
Palliative care
Patient satisfaction
Preventive medicine
Qualitative research
Quality of life
Research methodology
Researchers
Supervision
title Unmet needs related to the quality of life of advanced cancer patients in Korea: a qualitative study
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