Development and preliminary psychometric investigation of the German Satisfaction with Comprehensive Cancer Care (SCCC) Questionnaire

• Published in: Health and quality of life outcomes 2021-05, Vol.19 (1), p.147-147, Article 147
• Main Authors: Esser, Peter, Sautier, Leon, Sarkar, Susanne, Schilling, Georgia, Bokemeyer, Carsten, Koch, Uwe, Friedrich, Michael, Defossez, Gautier, Mehnert-Theuerkauf, Anja
• Format: Article
• Language: English
• Subjects: Breast cancer; Cancer; Care and treatment; Convergence; Evaluation; Family physicians; Health care access; Health care policy; Health services; Medical treatment; Methods; Neoplasm; Patient satisfaction; Patient-reported outcomes; Patients; Physicians; Primary care; Quality of life; Quantitative psychology; Questionnaires; Support services; Tumors; Validation; Working groups
• ISSN: 1477-7525; 1477-7525
• DOI: 10.1186/s12955-021-01784-y

The assessment of patient satisfaction during treatment is essential to provide patient-centered high-quality cancer care. Nevertheless, no German instrument assesses patient satisfaction with comprehensive cancer care, which not only includes oncological treatment, but also interpersonal quality of care as well as psychosocial support services. Based on the French REPERES-60, we developed the German Patient Satisfaction with Comprehensive Cancer Care (SCCC) questionnaire. The REPERES-60 was translated and the items were adapted to make it applicable to the German healthcare system and across different tumor entities. Scales of the resulting instrument were extracted via principal axis factoring (PAF). Subsequently, we investigated the reliability (Cronbach's Alpha, CA), discriminatory power (corrected item-scale correlations) and convergent validity (pre-specified correlations of the SCCC with different outcomes). The SCCC consisted of 32 items which were subsequently tested among a sample of 333 patients across different tumor entities (response rate: 47%). Average age was 59 years (standard deviation: 14), 63% were male. PAF revealed four multi-item scales named Competence, Information, Access and Support accounting for 71% of the variance. Two single-items scales assess global satisfaction with medical and psychosocial care, respectively. CA across the multi-item scales ranged from .84 to .96. Discriminatory power was sufficiently high, with all r ≥ .5. Convergent validity was largely verified by negative associations of the four multi-item scales with depressive/anxious symptomatology (r ≥ - .18, p