Quality of Life in Patients Suffering from Beta-Thalassemia Major in Amirkola, Iran

Abstract Introduction: Thalassemia is regarded as a genetic hematologic disease that affects various aspects of patients’ life. Measuring the health-related quality of life is a multidimensional concept that focuses on the disease as well as its treatment. Materials and methods:  This  cross-section...

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Published in:Journal of community health research 2015-12, Vol.4 (3), p.234-238
Main Authors: Sadati Sadati, Tamaddoni Tamaddoni, Mohammad hossein baghianimoghadam
Format: Article
Language:English
Subjects:
Adolescents
Kidscreen-27
Quality of life
Thalassemia major
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creator Sadati Sadati
Tamaddoni Tamaddoni
Mohammad hossein baghianimoghadam
description Abstract Introduction: Thalassemia is regarded as a genetic hematologic disease that affects various aspects of patients’ life. Measuring the health-related quality of life is a multidimensional concept that focuses on the disease as well as its treatment. Materials and methods:  This  cross-sectional study consisted of  50 adolescents aged 12-18 years suffering from Thalassemia major, out of which 30 were females and 20 were males with the mean (±SD) age of 15.38(±2) years old. The present study was carried out  applying the  Kidscreen-27 health-related questionnaire. Results: There was no statistically significant difference between urban and rural patients’ scores (P-value=0.22). Comparison of quality of life amongst female and male patients indicated  male patients' better scores in regard with physical well-being, psychosocial well-being and the total score of quality of life compared to the females (P-value
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Measuring the health-related quality of life is a multidimensional concept that focuses on the disease as well as its treatment. Materials and methods:  This  cross-sectional study consisted of  50 adolescents aged 12-18 years suffering from Thalassemia major, out of which 30 were females and 20 were males with the mean (±SD) age of 15.38(±2) years old. The present study was carried out  applying the  Kidscreen-27 health-related questionnaire. Results: There was no statistically significant difference between urban and rural patients’ scores (P-value=0.22). Comparison of quality of life amongst female and male patients indicated  male patients' better scores in regard with physical well-being, psychosocial well-being and the total score of quality of life compared to the females (P-value&lt;0.05). The total score of quality of life within adolescents with higher educated  fathers was reported to be slightly higher than that of the other groups. Conclusion: The study findings revealed that there was neither a significant difference between urban and rural patients with thalassemia major, nor a relation between adolescent patients'  quality of life  and their fathers’ education level. 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Measuring the health-related quality of life is a multidimensional concept that focuses on the disease as well as its treatment. Materials and methods:  This  cross-sectional study consisted of  50 adolescents aged 12-18 years suffering from Thalassemia major, out of which 30 were females and 20 were males with the mean (±SD) age of 15.38(±2) years old. The present study was carried out  applying the  Kidscreen-27 health-related questionnaire. Results: There was no statistically significant difference between urban and rural patients’ scores (P-value=0.22). Comparison of quality of life amongst female and male patients indicated  male patients' better scores in regard with physical well-being, psychosocial well-being and the total score of quality of life compared to the females (P-value&lt;0.05). The total score of quality of life within adolescents with higher educated  fathers was reported to be slightly higher than that of the other groups. 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subjects Adolescents
Kidscreen-27
Quality of life
Thalassemia major
title Quality of Life in Patients Suffering from Beta-Thalassemia Major in Amirkola, Iran
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