Understanding patient experiences: The powerful source of written patient stories

A recent editorial in this journal emphasized the importance of these stories for improving the quality of health‐care services. 1 Similarly, using patient stories for self‐help and research are propagated. 2,3 Placing patient stories centre stage is felt to be important as stories offer much more i...

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Bibliographic Details
Published in:Health expectations : an international journal of public participation in health care and health policy 2020-06, Vol.23 (3), p.717-718
Main Authors: Bovenkamp, Hester M., Platenkamp, Coleta, Bal, Roland
Format: Article
Language:English
Subjects:
Activities of daily living
Attention
Children & youth
Health care industry
Health care reform
Health status
Historical analysis
Letter to the Editor
Medical research
Medicine, Experimental
Patients
Researchers
Social aspects
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Summary:A recent editorial in this journal emphasized the importance of these stories for improving the quality of health‐care services. 1 Similarly, using patient stories for self‐help and research are propagated. 2,3 Placing patient stories centre stage is felt to be important as stories offer much more in‐depth information compared to, for example, satisfaction questionnaires and thereby allowing for a better understanding of patient experiences with treatment, health‐care services and daily life with a condition. 4 This increased attention for patient stories has resulted in the use of many story collecting methods such as interviews, focus groups, mirror meetings and experience‐based co‐design. [...]written stories allow for a historical analysis of patient experiences. [...]with this contribution we would like to draw attention to a readily available but often overlooked valuable source of information regarding patient experiences, those of written patient stories.
ISSN:1369-6513
1369-7625
DOI:10.1111/hex.13053